Caregivers and Physical therapists' Perceptions of Telehealth for infants with Down Syndrome during COVID-19: Case reports




Telemonitoring;; Early intervention; Child health.


The aim of this study is to describe the caregivers and physical therapists’ perceptions of telehealth strategies in two cases of infants with Down syndrome during the COVID-19 pandemic in Brazil. Methodology: The physical therapy intervention program was carried out using synchronous and asynchronous methods according to the social context of each family. Results: The telehealth strategies were positively evaluated by caregivers and physical therapists. Conclusion: The study concluded that telehealth has promoted satisfactory results in infants' physiotherapeutic monitoring, and it could be an additional tool for early intervention after the pandemic.


Australian Digital Healthcare Agency. (2020). National Digital Healthcare Strategy. Recuperado de

Brazil. Brazilian Institute of Geography and Statistics. (2020). Estimated resident population for Municipalities and for federation units with reference date on July 1, 2018. Ministry of Planning, Development and Management.

Brazil. Ministry of Health of Brazil. (2019). Guidelines for Telehealth in Brazil, within the scope of SUS. Decree No. 9795, of May 17, 2019, Department of Digital Health, Ministry of Health.

Brazil. Ministry of Health of Brazil. (2020). Brazilian panel on COVID-19. Official federal government's website for disclosing the results of Covid-19 in Brazil. Recuperado de

Dimer, N. A., Canto-Soares, N. D., Santos-Teixeira, L. D., & Goulart, B. N. G. (2020). The COVID-19 pandemic and the implementation of telehealth in speech-language and hearing therapy for patients at home: an experience report. Codas, 32(3), e20200144. (Pandemia do COVID-19 e implementacao de telefonoaudiologia para pacientes em domicilio: relato de experiencia.)

Dirks, T., Blauw-Hospers, C. H., Hulshof, L. J., & Hadders-Algra, M. (2011). Differences between the family-centered "COPCA" program and traditional infant physical therapy based on neurodevelopmental treatment principles. Phys Ther, 91(9), 1303-1322.

dos Santos, M. T., Moura, S. C., Gomes, L. M., Lima, A. H., Moreira, R. S., Silva, C. D., & Guimaraes, E. M. (2014). Telehealth application on the rehabilitation of children and adolescents. Rev Paul Pediatr, 32(1), 136-143.

Field-Fote, E. E. (2020). Lessons From COVID-19 on the Stepwise Development of Interventions. J Neurol Phys Ther, 44(3), 177-178.

Hadders-Algra, M. (2001). Early brain damage and the development of motor behavior in children: clues for therapeutic intervention? Neural Plast, 8(1-2), 31-49.

Hashikawa, A. N., Sells, J. M., DeJonge, P. M., Alkon, A., Martin, E. T., & Shope, T. R. (2020). Child Care in the Time of Coronavirus Disease-19: A Period of Challenge and Opportunity. J Pediatr, 225, 239-245.

Karlamangla, A. S., Merkin, S. S., Crimmins, E. M., & Seeman, T. E. (2010). Socioeconomic and ethnic disparities in cardiovascular risk in the United States, 2001-2006. Ann Epidemiol, 20(8), 617-628.

Minghelli, B., Soares, A., Guerreiro, A., Ribeiro, A., Cabrita, C., Vitoria, C., Nunes, C., Martins, C., Gomes, D., Goulart, F., Santos, R. M. D., & Antunes, R. (2020). Physiotherapy services in the face of a pandemic. Rev Assoc Med Bras (1992), 66(4), 491-497.

Morgan, C., Novak, I., & Badawi, N. (2013). Enriched environments and motor outcomes in cerebral palsy: systematic review and meta-analysis. Pediatrics, 132(3), e735-746.

Moriyama, C. H., Massetti, T., Crocetta, T. B., Silva, T. D. D., Mustacchi, Z., Guarnieri, R., De Abreu, L. C., Araujo, A. V. L., Menezes, L. D. C., Monteiro, C. B. M., & Leone, C. (2020). Systematic Review of the Main Motor Scales for Clinical Assessment of Individuals with down Syndrome. Dev Neurorehabil, 23(1), 39-49.

Pereira A.S. et al. (2018). Metodologia da pesquisa científica. [eBook]. Santa Maria. Ed. UAB / NTE / UFSM.

Piper, M. C. D., J. (1994). Motor assessment of the developing infant. Philadelphia: WB Saunders.

Ray, K. N., Mehrotra, A., Yabes, J. G., & Kahn, J. M. (2020). Telemedicine and Outpatient Subspecialty Visits Among Pediatric Medicaid Beneficiaries. Acad Pediatr, 20(5), 642-651.

Sgandurra, G., Bartalena, L., Cecchi, F., Cioni, G., Giampietri, M., Greisen, G., Herskind, A., Inguaggiato, E., Lorentzen, J., Nielsen, J. B., Orlando, M., Dario, P., & CareToy, C. (2016). A pilot study on early home-based intervention through an intelligent baby gym (CareToy) in preterm infants. Res Dev Disabil, 53-54, 32-42.

Sgandurra, G., Lorentzen, J., Inguaggiato, E., Bartalena, L., Beani, E., Cecchi, F., Dario, P., Giampietri, M., Greisen, G., Herskind, A., Nielsen, J. B., Rossi, G., Cioni, G., & CareToy, C. (2017). A randomized clinical trial in preterm infants on the effects of a home-based early intervention with the 'CareToy System'. PLoS One, 12(3), e0173521.

Sisk, B., Alexander, J., Bodnar, C., Curfman, A., Garber, K., McSwain, S. D., & Perrin, J. M. (2020). Pediatrician Attitudes Toward and Experiences With Telehealth Use: Results From a National Survey. Acad Pediatr, 20(5), 628-635.

Smith, A. C., Thomas, E., Snoswell, C. L., Haydon, H., Mehrotra, A., Clemensen, J., & Caffery, L. J. (2020). Telehealth for global emergencies: Implications for coronavirus disease 2019 (COVID-19). J Telemed Telecare, 26(5), 309-313.

Federal Council of Physiotherapy and Occupational Therapy. (2018). COFFITO defends that Chiropractic is a specialty of Physiotherapy. Brasília: Federal Council of Physiotherapy and Occupational Therapy. Recuperado de Council of Physiotherapy and Occupational Therapy. (2020). Resolution No. 516 of March 23, 2020. Teleconsultation, Telemonitoring and Teleconsulting.

Veerapandiyan, A., Wagner, K. R., Apkon, S., McDonald, C. M., Mathews, K. D., Parsons, J. A., Wong, B. L., Eichinger, K., Shieh, P. B., Butterfield, R. J., Rao, V. K., Smith, E. C., Proud, C. M., Connolly, A. M., & Ciafaloni, E. (2020). The care of patients with Duchenne, Becker, and other muscular dystrophies in the COVID-19 pandemic. Muscle Nerve, 62(1), 41-45.

Wijesooriya, N. R., Mishra, V., Brand, P. L. P., & Rubin, B. K. (2020). COVID-19 and telehealth, education, and research adaptations. Paediatr Respir Rev, 35, 38-42.

Wood, S. M., White, K., Peebles, R., Pickel, J., Alausa, M., Mehringer, J., & Dowshen, N. (2020). Outcomes of a Rapid Adolescent Telehealth Scale-Up During the COVID-19 Pandemic. J Adolesc Health, 67(2), 172-178.

World Health Organization. (2001). International Classification of functioning, disability and health: ICF.

World Health Organization. (2018). Digital technologies: Shaping the future of primary healthcare. Recuperado de




How to Cite

FORMIGA, C. K. M. R.; DIONISIO, J.; SILVA, C. F. R. da; TUDELLA, E. Caregivers and Physical therapists’ Perceptions of Telehealth for infants with Down Syndrome during COVID-19: Case reports. Research, Society and Development, [S. l.], v. 10, n. 3, p. e27710313460, 2021. DOI: 10.33448/rsd-v10i3.13460. Disponível em: Acesso em: 14 apr. 2021.



Health Sciences