Everyday marks: experience of the woman-mother and caregiver of children with special health needs

Authors

DOI:

https://doi.org/10.33448/rsd-v9i11.9557

Keywords:

People with disabilities; Caregivers; Nursing care; Home care services.

Abstract

Objective: to understand the experience and daily life of women-mothers and caregivers of children with special health needs and the implications for their health. Methodology: qualitative research carried out with ten mothers of children with special health needs, through semi-structured interviews. Data processing took place with the aid of the IRAMUTEQ software. The data were organized into thematic categories with subsequent content analysis. Results: a textual corpus composed of 10 Initial Context Units or interviews was analyzed, in which 451 text segments or Elementary Context Unit and 345 analyzed segments were obtained, that is, 76.5% of the analyzed corpus. Mothers experience social isolation, overload of activities and physical exhaustion, resulting in the need for therapies and care to ensure their physical, psychosocial and emotional health. Final considerations: it became evident that being the mother of a child with special health needs represents a singularity with the object of care of this mother woman, also demonstrating a strong neglect in the health care of women-mothers in favor of their children.

Author Biographies

Géssica Nobre, Universidade do Estado do Pará

Residente no Programa de Residência Multiprofissional em Atenção Integral em Ortopedia e Traumatologia. Santarém, Pará, Brasil.

Gutembergue Santos de Sousa, Universidade Federal do Mato Grosso/Programa de Pós-Graduação em Enfermagem

Doutorando do Programa de Pós-Graduação em Enfermagem (Doutorado). Cuiabá, Mato Grosso, Brasil.

Maria Mônica Machado de Aguiar Lima, Universidade do Estado do Pará

Professora do Curso de Graduação em Enfermagem

Mestre em Doenças Tropicais

Yara Macambira Santana Lima, Universidade do Estado do Pará

Doutora em Enfermagem. Professora adjunto do Curso de Graduação em Enfermagem

Maria Goreth Silva Ferreira, Universidade do Estado do Pará

Professora Adjunto do Curso de Graduação em Enfermagem

Doutora em Enfermagem

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Published

04/11/2020

How to Cite

Nobre, G., Sousa, G. S. de, Lima, M. M. M. de A., Lima, Y. M. S. ., & Ferreira, M. G. S. (2020). Everyday marks: experience of the woman-mother and caregiver of children with special health needs. Research, Society and Development, 9(11), e649119557. https://doi.org/10.33448/rsd-v9i11.9557

Issue

Section

Health Sciences