The impacts that interfere with the quality of life of children with epilepsy: An integrative review
DOI:
https://doi.org/10.33448/rsd-v13i3.45216Keywords:
Child; Epilepsy; Quality of life.Abstract
To look at the scientific evidence on the impacts that interfere with the quality of life of children with epilepsy. Integrative review carried out on the following databases: Latin American and Caribbean Health Sciences Literature (LILACS), Medical Literature Analysis and Retrieval System Online (MEDLINE) and Scientific Electronic Library Online (Scielo). The sample consisted of 10 primary studies, which were conducted between 2008 and 2023 and in Portuguese, Spanish and English. A descriptive method was used to analyze and synthesize the results.When observing the impacts mentioned in the literature, those related to learning stand out, including difficulty learning, memory and lack of attention, social impacts, such as relationships with friends and society, autonomy and the child's behavior; With regard to psychological impacts, those arising with epilepsy or those that begin after discovering the diagnosis due to difficulties and feelings predominate. Family impacts are evident, such as the protection and care that the family has, leading to overload and stress, resulting in a feeling of guilt felt by the child due to the reality experienced by the family. Given the impacts observed, the main ones are those related to school experience, social relationships, psychological and family aspects that are.
References
Alnaamani, A., Ahmad, F., Al-Saadoon, M., Rizvi, S. G. A., & Al-Futaisi, A. (2023). Assessment of quality of life in children with epilepsy in Oman. Journal of Patient-Reported Outcomes, 7(1), 9. 10.1186/s41687-023-00555-1.
Brasil, Ministèrio da Saùde, Secretaria de Atençâo a Saude, Secretaria de Ciências, Tecnologia e Insumos Estratégicos. (2018,21 de junho). Portaria Conjunta Nº 17, de 21 de junho de 2018. Aprova o protocolo Clinico e Diretrizes Terapeuticas de Epilepsia. 2018. http://portalms.saude.gov.br/protocolos-e-diretrizes
Brasil. Ministério da Saúde. Secretaria de Atenção a Saúde. Departamento de Atenção Básica. (2013). Acolhimento a demanda espontânea: Queixas mais comuns na Atenção Básica. CADERNOS DE ATENÇÂO BÁSICA n.28, Volume II. Brasília: Ed Ministério da Saúde.292 p. https://bvsms.saude.gov.br/bvs/publicacoes/acolhimento_demanda_espontanea_queixas_comuns_cab28v2.pdf
Brasil. Ministério da Saúde. Secretaria de Atenção a Saúde. Departamento de Atenção Básica. (2012). Saúde da Criança: Crescimento e Desenvolvimento. CADERNOS DE ATENÇÂO BASICA. Brasília: Ed Ministério da Saúde. 272 p. https://bvsms.saude.gov.br/bvs/publicacoes/saude_crianca_crescimento_desenvolvimento.pdf
Brasil. Ministério da Saúde. Secretaria de Atenção a Saúde. Departamento de Atenção Especializada e Temática. (2018). Avaliação e Conduta da Epilepsia na Atenção Básica e na Urgencia e Emergencia.18p. http://bvsms.saude.gov.br/bvs/publicacoes/avaliação_conduta_epilepsia_atencao_basica.pdf ISBN: 978-85-334-2569-9
Brasil. Ministério da saúde. (2022,03 de novembro) Epilepsia: conheça a doença e os tratamentos disponíveis no SUS: Assuntos, Noticias, março, 2022, Brasília: Ministério da Saúde,2022. https://www.gov.br/saude/pt-br/assuntos/noticias/2022/marco/epilepsia-conheca-a-doenca-e-os-tratamentos-disponiveis-no-sus#:~:text=A%20epilepsia%20é%2
Gagliardi, I. C., Guimarães, C. A., Souza, E. A., Schmutzler, K. M., & Guerreiro, M. M. (2011). Quality of life and epilepsy surgery in childhood and adolescence. Arquivos de neuro-psiquiatria, 69, 23-26. https://doi.org/10.1590/S0004-282X2011000100006.
Kopciuch, D., Flicinsk, J, Steirborn, B, Wiktor,A, W, Paczkowska ,A, Zaprutko ,T, Ratajczak, P, Nowakowska, E,& Kus, K.,(2022).Pharmacoeconomics aspects of antiepileptic drugs in pediatric patients with epilepsy. Internacional Journal of Environmental Research and Public Health, 19 (12), 7517. https://doi.org/10.3390/ijerph19127517.
Moré., M. S. I., Roche, D. J. R. F., Velázquez, L. Y. R., Pal, D. S. G. & Munõz, A. R. (2012). Calidad de vida em ñiños y adolescentes com epilepsia. Revista Cubana de Enfermería. 28 (2), 99-111. http://scielo.sld.cu/scielo.php?script=sci_arttext&pid=S0864-03192012000200005&lng=es&tlng=es.
Moura, R. G. F., Batista, A. A., Cobe, G. M., Ferreira, C. L., Melo, P. D. F., & Maia, E. M. C. (2014). Prevalência dos fatores instrínsecos e extrínsecos do processo de aprendizagem em crianças com epilepsia. Revista CEFAC, 16, 472-478. https://doi.org/10.1590/1982-0216201416212
Nabavi, M. N., Puka, K., Palmer, K., Speechlev, K. N. (2022) Impact of number of nati-seizure medicadtions on long-term health-related quality of life in children with epilepy: A prospective cohort study.SeiZure European Journal of Epilepy. 99, 120-126. https://doi.org/10.1016/j.seizure.2022.05.012
Oliveira, E. P. D. M. D., Neri, M. L., Medeiros, L. L. D., Guimarães, C. A., & Guerreiro, M. M. (2010). Avaliação do desempenho escolar e praxias em crianças com Epilepsia Rolândica. Pró-Fono Revista de Atualização Científica, 22, 209-214. https://doi.org/10.1590/S0104-56872010000300009
Opas. (2018,24 de janeiro) Pan American Health Organization, The Management of Epilepsy in the Public Health Sector 2018.New York: OPAS,2019. https://paho.org/pt/noticias/24-1-2019-mais-da-metade-das-pessoas-com-epilepsia-na-america-latina-e-no-caribe-nao#:~:text=A%20OPAS%2C%20que%20também%20é,na%20atenção%20primária%20de%20saúde
Pompeo, D. A., Rossi, L. A., & Galvão, C. M. (2009). Revisão integrativa: etapa inicial do processo de validação de diagnóstico de enfermagem. Acta paulista de enfermagem, 22, 434-438. https://doi.org/10.1590/S0103-21002009000400014
Rozensztrauch, A., & Kołtuniuk, A. (2022). The Quality of Life of Children with Epilepsy and the Impact of the Disease on the Family Functioning. International journal of environmental research and public health, 19(4), 2277. https://doi.org/10.3390/ijerph19042277
Salinas,S, M, Moreno, S, A, Carmen,M, G, Molina, H. D, Lafuente, H. M, & Lòpes ,P. J. (2023). Espere e veja na epilepsia pediátrica. Nossa experiência. Revista Neurologia,76 (03), 83-89. https://doi.org/10.33588/rn.7603.2022184.
Serra-Pinheiro, M. A., D'andrea-Meira, I., Angelim, A. I. M., Fonseca, F. A., & Zimmermann, N. (2021). High prevalence of psychiatric comorbidities in children and adolescents at a tertiary epilepsy center. Arquivos de Neuro-Psiquiatria, 79, 521-526. https://doi.org/10.1590/0004-282X-ANP-2020-0202
Sırtbaş, G., Yalnızoğlu, D., & Livanelioğlu, A. (2021). Comparação da aptidão física, atividade e qualidade de vida das crianças com epilepsia e seus pares saudáveis. Pesquisa sobre epilepsia, 178, 106795. https://doi.org/10.1016/j.eplepsyres.2021.106795
Souza, M. T. D., Silva, M. D. D., & Carvalho, R. D. (2010). Revisão integrativa: o que é e como fazer. Einstein (São Paulo), 8, 102-106. https://doi.org/10.1590/S1679-45082010RW1134
Widjaja, E. M D., Puka, E K., & Speenchy, K (2023). Trajectory of Health- Related Qualit yof Life After Pediatric Epilepsy Surgery. JAMA Network. 6(3): e234858. https://doi.org/10.1001/jamanetworkopen.2023.4858
Ursi, E. S., & Gavão, C. M. (2006). Prevenção de lesões de pele no perioperatório: revisão integrativa da literatura. Revista Latino-Americana de Enfermagem, 14, 124-131. https://doi.org/10.1590/S0104-11692006000100017
Downloads
Published
How to Cite
Issue
Section
License
Copyright (c) 2024 Maria Rita Santos de Siqueira; Maria Joana Pinto Araujo; Kétsia Lohanna Sousa dos Santos; Rayane Fortes Diniz; Natacha da Silva Gomes; Layara Fernandes Barros
This work is licensed under a Creative Commons Attribution 4.0 International License.
Authors who publish with this journal agree to the following terms:
1) Authors retain copyright and grant the journal right of first publication with the work simultaneously licensed under a Creative Commons Attribution License that allows others to share the work with an acknowledgement of the work's authorship and initial publication in this journal.
2) Authors are able to enter into separate, additional contractual arrangements for the non-exclusive distribution of the journal's published version of the work (e.g., post it to an institutional repository or publish it in a book), with an acknowledgement of its initial publication in this journal.
3) Authors are permitted and encouraged to post their work online (e.g., in institutional repositories or on their website) prior to and during the submission process, as it can lead to productive exchanges, as well as earlier and greater citation of published work.
