Family caregiver's perspective on children with sickle cell disease: an integrative review

Authors

DOI:

https://doi.org/10.33448/rsd-v10i11.19693

Keywords:

Caregivers; Kid; Sickle cell anemia.

Abstract

This study aims to search the literature for activities performed by caregivers to promote a better quality of life for children with sickle cell anemia, emphasizing the importance of home care. This is a descriptive study of the integrative literature review type. The collection took place in the following databases: Latin American and Caribbean Literature on Health Sciences (LILACS); Nursing Database (BDENF) and Scientific Electronic Library Online (SciELO). The studies were collected from June to July 2021, using the descriptors “Caregivers; kid; Sickle Cell Anemia”, crossed with the Boolean operators “AND” and “OR”, located in the list of Health Science Descriptors (DECs). After applying the eligibility criteria, 9 studies were selected for the research. The main difficulty highlighted in this study was the lack of correct information from caregivers about sickle cell anemia, and the lack of interaction between health professionals and family members. of pain in children. It is concluded that an effective health education is needed for this population, as correct information about the disease is the basis for quality care in the home environment.

References

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Published

04/09/2021

How to Cite

SANTOS, A. B. A. de S.; COSTA , L. E. S. .; SOUSA , K. O. de .; MACHADO , B. A. da S. .; COSTA , G. P. .; MATOS , D. F. .; MIRANDA , L. M. T. .; ARAÚJO , T. C. S. G. de .; GUEDES, T. de S. A. .; MARTINS , V. M. P. .; CRUZ , R. de L. da; LIMA , D. de O. .; COÊLHO , L. P. I. .; TEIXEIRA, L. B. . .; LIMA , E. N. da S. .; SILVA , J. Q. da .; JAQUES , A. F. C. .; PAULA , S. L. de; MARTINS , Y. C. .; SILVA , J. L. M. da .; FARIA , R. da S. .; SANTOS, K. L. S. dos . .; RAMALHO, L. C. de B. . .; OLIVEIRA, G. P. de . Family caregiver’s perspective on children with sickle cell disease: an integrative review. Research, Society and Development, [S. l.], v. 10, n. 11, p. e383101119693, 2021. DOI: 10.33448/rsd-v10i11.19693. Disponível em: https://rsdjournal.org/index.php/rsd/article/view/19693. Acesso em: 22 nov. 2024.

Issue

Vol. 10 No. 11

Section

Review Article

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Copyright (c) 2021 Allan Bruno Alves de Sousa Santos; Lina Eduarda Silva Costa ; Kaline Oliveira de Sousa ; Bruno Abílio da Silva Machado ; Gabriella Pacheco Costa ; Dalton Ferreira Matos ; Livia Maria Tavares Miranda ; Tereza Cristina Santos Gomes de Araújo ; Thiemmy de Souza Almeida Guedes; Victória Maria Pontes Martins ; Rafaela de Lima da Cruz ; Débora de Oliveira Lima ; Luana Pereira Ibiapina Coêlho ; Leandro Barbosa Teixeira; Edla Nayara da Silva Lima ; Joyce Quirino da Silva ; Allan Francisco Costa Jaques ; Saulo Leite de Paula ; Yanna Cavalcante Martins ; Jônatas Lucas Marcelino da Silva ; Raphaela da Silva Faria ; Kleber Luiz Santana dos Santos; Luciana Carneiro de Brito Ramalho; Gerson Pedroso de Oliveira

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