Psychosocial aspects of a patient treated surgically by Operation Smile: a case report
Keywords:Cleft Lip; Cleft Palate; Social stigma.
Cleft lip and palate is one of the most common congenital facial malformations and has a multifactorial etiology. Such comorbidity affects not only the organic and anatomical characteristics, but also the psychological and social aspects. Operation Smile works with the aim of contributing, especially among the most needy population, to multifactorial treatment, aiming at well-being in all aspects of human life. The objective of this study was to report the case of a patient with cleft lip and palate (CLP), born from a twin pregnancy with a twin without the deformity, clinically and surgically followed up by Operation Smile Brazil since childhood, in order to demonstrate and analyze the psychosocial aspects shaped by living with the deformity at different stages of his life, taking into account, mainly, the treatment offered and the family relationship, these factors being indispensable, not only during his growth and development, but also in his social and professional insertion. during adult life. Emphasizing the evolution of a child completely introverted by the stigmas associated with the deformity to a teenager and later a young woman increasingly communicative and socially related as the multiprofessional treatment was applied, in parallel with the support and family care always present in her life, highlighting how important the work of Operation Smile is to society.
Barduzzi, R. M., Razera, A. P. R., Farinha, F. T., Bom, G. C., Manso, M. M. F. G., & Trettene, A. dos S. (2021). Repercussões psicossociais vivenciadas por pais cuidadores de lactentes com fissura orofacial sindrômicos. Revista Brasileira de Saúde Materno Infantil, 21(4), 1101-1107. doi: 10.1590/1806-93042021000400008
Bennett, K. G., Ranganathan, K., Patterson, A. K., Baker, M. K., Vercler, C. J., Kasten, S. J., Buchman, S. R., & Waljee, J. F. (2018). Caregiver-Reported Outcomes and Barriers to Care among Patients with Cleft Lip and Palate. Plastic and Reconstructive Surgery, 142(6), 884e891e. doi: 10.1097/PRS.0000000000004987
Bentes O. M.; Furtado P. F. G., Macêdo A. E. G. & Macêdo C. G. (2020). Fissuras labiopalatinas em crianças da região do baixo amazonas: um enfoque epidemiológico. Pediatria – Experiências Profissionais e Relatos de Caso / Guilherme Barroso Langoni de Freitas. 1. ed. 1. Vol. 13 Cap. - Irati: Pasteur, 2020.
Corcoran, M., Karki, S., Harila, V., Kyngäs, H., Luoto, A., Ylikontiola, L. P., Sándor, G. K., & Anttonen, V. (2020). Oral health‐related quality of life among young adults with cleft in northern Finland. Clinical and Experimental Dental Research, 6(3), 305–310. doi: 10.1002/cre2.284
Cunha, E. V.; Galli, M. V.; Lisboa, N. D.; Prado, R. B. R.; Campos, E. B. V. & Neme, C. M. B. (2017). Aspectos psicológicos relacionados ao indivíduo com fissura labiopalatal: uma revisão de literatura. Salusvita, Bauru, v. 36, n. 4, p. 1105-1127, 2017. https://secure.unisagrado.edu.br/static/biblioteca/salusvita/salusvita_v36_n4_2017_art_10.pdf
Escobar, D. F. S. S., Jesus, T. F. de, Noll, P. R. e S., & Noll, M. (2020). Family and School Context: Effects on the Mental Health of Brazilian Students. International Journal of Environmental Research and Public Health, 17(17), 6042. doi: 10.3390/ijerph17176042
Fitzsimons, K. J., Copley, L. P., Setakis, E., Charman, S. C., Deacon, S. A., Dearden, L., & van der Meulen, J. H. (2017). Early academic achievement in children with isolated clefts: a population-based study in England. Archives of Disease in Childhood, 103(4), 356–362. doi: 10.1136/archdischild-2017-313777
Gjerdevik, M., Lie, R. T., Haaland, Ø. A., Berg, E., Feragen, K. B., & Sivertsen, Å. (2021). Isolated oral clefts and school grades: population-based cohort study from Norway. BMJ Open, 11(10), e046944. doi: 10.1136/bmjopen-2020-046944
Glener, A. D., Allori, A. C., Shammas, R. L., Carlson, A. R., Pien, I. J., Aylsworth, A. S., Meyer, R., Pimenta, L., Strauss, R., Watkins, S., & Marcus, J. R. (2017). A Population-Based Exploration of the Social Implications Associated with Cleft Lip and/or Palate. Plastic and Reconstructive Surgery Global Open, 5(6), e1373. .doi: 10.1097/GOX.0000000000001373
Grewal, S. S., Ponduri, S., Leary, S. D., Wren, Y., Thompson, J. M. D., Ireland, A. J., Ness, A. R., & Sandy, J. R. (2020). Educational Attainment of Children Born with Unilateral Cleft Lip and Palate in the United Kingdom. The Cleft Palate-Craniofacial Journal, 58(5), 587–596. doi: 10.1177/1055665620959989
Karki, S., Horváth, J., Laitala, M. L., Vástyán, A., Nagy, Á., Sándor, G. K., & Anttonen, V. (2021). Validating and assessing the oral health-related quality of life among Hungarian children with cleft lip and palate using Child-OIDP scale. European Archives of Paediatric Dentistry: Official Journal of the European Academy of Paediatric Dentistry, 22(1), 57–65. doi: 10.1007/s40368-020-00525-x
Katiyar R. V. & Ahmad S. (2019). Psychosocial and professional challenges for individual having cleft lit and palate: a case report. Era’s jornal of medical research, vol.6 no.2.
Operação Sorriso (2020). A Operação Sorriso https://www.operacaosorriso.org.br/nosso-trabalho/
Rodrigues, C. P. M., Pelizzoni, A. V., Brischke, J. A. P., Kazmierski, S., Baltazar, M. M. de M., Coelho, R. T., & Lima, D. P. (2022). Reabilitação oral de paciente com fissura labiopalatina: relato de caso. Research, Society and Development, 11(3), e10511326306. doi: 10.33448/rsd-v11i3.26306
Ruiz-Guillén, A., Suso-Ribera, C., Romero-Maroto, M., Gallardo, C., & Peñacoba, C. (2021). Perception of quality of life by children and adolescents with cleft lip/palate after orthodontic and surgical treatment: gender and age analysis. Progress in Orthodontics, 22(1). doi: 10.1186/s40510-021-00354-8
Santos, J. V. N.; Tavares, J. L. F.; Silva, M. A. B.; Cavalcanti, A. F. M.; Barbosa, D. N. & Leite, R. B. (2020). Fissura labiopalatina: estudo do papel do profissional de saúde na diminuição dos danos ao paciente. Revista ciências e odontologia, 4 (1), 48-55. http://revistas.icesp.br/index.php/RCO/article/view/707/829
Scheller, K., Urich, J., Scheller, C., & Watzke, S. (2020). Psychosocial and socioeconomically aspects of mothers having a child with cleft lip and/or palate (CL/P): a pilot-study during the first year of life. Journal of Clinical and Experimental Dentistry, e864–e869. doi: 10.4317/jced.56288
Shibukawa, B. M. C., Rissi, G. P., Higarashi, I. H., & Oliveira, R. R. de. (2019). Factors associated with the presence of cleft lip and / or cleft palate in Brazilian newborns. Revista Brasileira de Saúde Materno Infantil, 19(4), 947–956. doi: 10.1590/1806-93042019000400012
Silva L. H. C.; Amaral B. P. A. & Silva J. P. P. (2021). Fissura labiopalatina: revisão literária. Rev Saúde Mult. 2021 mar, 9(1), 58-70. http://revistas.famp.edu.br/revistasaudemultidisciplinar/article/view/172/153
Vasconcelos, B. B. N. de, Albuquerque, D. F. de, Cavalcante, R. B., Teixeira, R. C., Neto, F. B. de V., & Ferreira, M. M. (2020). Qualidade de vida de pacientes acometidos por fissuras labiopalatinas sob a visão do cuidador. Brazilian Journal of Development, 6(7), 47807–47821. doi: 10.34117/bjdv6n7-428
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Copyright (c) 2022 Pedro Felipe Garcia Furtado; Onésimo Henrique Marques Bentes; Ana Emília Gomes Macêdo; Caroline Gomes Macêdo
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