Anticipated will directives in adult and elderly patients in palliative care and quality of life assessment: an integrative review
DOI:
https://doi.org/10.33448/rsd-v11i11.33587Keywords:
Palliative Care; Nursing; Advance Directives of Will; Quality of life.Abstract
Introduction: Palliative care corresponds to a type of therapeutic approach considering the individual as a whole and providing an improvement in the quality of life for him and for all those involved to minimize physical, psychological, social, and spiritual suffering. The Advance Directives of Will allow the individual to choose, still lucid and oriented, which care they wish to receive in their final moments of life. Objective: To analyze the effects of Advance Directives of Will in patients with terminal illness, to evaluate the quality of life and to identify the level of knowledge of the patient and of the professionals involved. Methodology: literature review, in 3 databases: Pubmed, Medline and Scielo using the health descriptors: “Advance Directives” AND “Palliative Care” AND “Aged”, “Quality of Life” AND “Advance Directives” and “Quality of Life” AND “Advance Directives” AND “Palliative Care”. The collection was carried out in October 2021 and the inclusion criteria were articles available in Portuguese, English or Spanish in national and international journals. The selected period was productions from the last 10 years (2011-2021). Results: For an understanding of the purpose of palliative care, communication is presented as essential, strengthening the links between the team, family members and patients. On the other hand, the lack of communication tends to generate distrust and insecurity in patients and their families. Randomized studies in developed countries that evaluated Advance Guidelines and quality of life found no differences in the quality of life of patients in the control arm and the intervention arm.
References
Alves, R. F., Andrade, S. F. de O., Melo, M. O., Cavalcante, K. B., & Angelim, R. M. (2015). Cuidados paliativos: desafios para cuidadores e profissionais de saúde. Fractal: Revista de Psicologia, 27 (2), 165-176. https://www.scielo.br/j/fractal/a/Wrrqb9J3NfVgDYvspvjdfVp/?lang=pt&format=pdf.
Arrieira, I. C. de O., Thoferhn, M. B., Schaefer, O. M., Fonseca, A. D. da, Kantorski, L. P., & Cardoso, D. H. (2017). O sentido do cuidado espiritual na integralidade da atenção em cuidados paliativos. Revista Gaúcha de Enfermagem, 38(3). https://www.scielo.br/j/rgenf/a/L84NfxSpsCVm5jxbJP3cKyQ/?lang=pt.
Boulanger, A., Chabal, T., Fichaux, M., Destandau, M., La Piana, J. M., Auquier, P., ... Salas, S. (2017). Opinions about the new law on end-of-life issues in a sample of french patients receiving palliative care. BMC palliative care, 16(1), 1-6. https://link.springer.com/article/10.1186/s12904-016-0174-8.
Brasil. (2018). Resolução nº 41, de 31 de outubro de 2018. Dispõe sobre as diretrizes para a organização dos cuidados paliativos, à luz dos cuidados continuados integrados, no âmbito Sistema Único de Saúde (SUS). Brasília: Ministério da Saúde. https://www.in.gov.br/web/guest/materia/-/asset_publisher/Kujrw0TZC2Mb/content/id/51520746/do1-2018-11-23-resolucao-n-41-de-31-de-outubro-de-2018-51520710.
Carduff, E., Johnston, S., Winstanley, C., Morrish, J., Murray, S. A., Spiller, J., & Finucane, A. (2018). What does ‘complex’mean in palliative care? Triangulating qualitative findings from 3 settings. BMC Palliative Care, 17(1), 1-7.: https://bmcpalliatcare.biomedcentral.com/articles/10.1186/s12904-017-0259-z.
Cogo, S. B., Lunardi, V. L., Quintana, A. M., Girardon-Perlini, N. M. O., & da Silveira, R. S. (2017). Diretivas antecipadas: desejos dos profissionais da saúde e cuidadores familiares. Revista Baiana de Enfermagem, 31(1). https://periodicos.ufba.br/index.php/enfermagem/article/view/16932.
Conselho Federal de Medicina. (2012) Resolução n.º 1.995, de 31 de agosto de 2012. Dispõe sobre as diretivas antecipadas de vontade dos pacientes. Brasília: CFM. http://www.portalmedico.org.br/resolucoes/cfm/2012/1995_2012.htm.
Dadalto, L., Tubinambás, U., & Grego, D. B. (2014). Diretivas antecipadas de vontade: um modelo Brasileiro. Revista Bioética, 21(3), 263-276. https://www.scielo.br/j/bioet/a/SzZm7jf3WDTczJXfVFpF7GL/?lang=pt.
Freire, M. E. M., Costa, S. F. G. da, Lima, R. A. G. de, & Sawada, N. O. (2018). Qualidade de vida relacionada à saúde de pacientes com câncer em cuidados paliativos. Texto e Contexto Enfermagem, 27(2). https://www.scielo.br/j/tce/a/br6jYdcz5C5r8kVkctrpfPG/?lang=pt.
Golla, H., Galushko, M., Pfaff, H., & Voltz, R. (2014). Multiple sclerosis and palliative care-perceptions of severely affected multiple sclerosis patients and their health professionals: a qualitative study. BMC Palliative Care, (13)11. https://bmcpalliatcare.biomedcentral.com/articles/10.1186/1472-684X-13-11.
Gomes, B. M. M., Salomão, L. A., Simões, A. C., Rebouças, B. O., Dadalto, L., & Barbosa, M. T. (2018). Directivas anticipadas de voluntad en geriatría. Revista Bioética, 26, 429-439. 2018. https://www.scielo.br/j/bioet/a/PvkTrbmqMx7fHMjCyZHSdKr/abstract/?lang=pt.
Halpern, S. D., Small, D. S., Troxel, A. B., Cooney, E., Bayes, B., Chowdhury, M., ... Bryce, C. L. (2020). Effect of default options in advance directives on hospital-free days and care choices among seriously ill patients: a randomized clinical trial. JAMA Network Open, 3(3), e201742-e201742. https://jamanetwork.com/journals/jamanetworkopen/article-abstract/2763475.
Hermes, H. R., & Lamarca, I. C. A. (2013). Cuidados paliativos: uma abordagem a partir das categorias profissionais de saúde. Ciência e Saúde Coletiva, 18(9), 2577-2588. http://dx.doi.org/10.1590/s1413-81232013000900012.
Johnson, C. E., Singer, R., Masso, M., Sellars, M., & Silvester, W. (2015). Palliative care health professionals’ experiences of caring for patients with advance care directives. Australian Health Review, 39(2), 154-159. https://www.publish.csiro.au/AH/ah14119.
Johnson, S. B., Butow, P. N., Bell, M. L., Detering, K., Clayton, J. M., Silvester, W., … Stockler, M. R. (2018). A randomised controlled trial of an advance care planning intervention for patients with incurable cancer. British Journal of Cancer, 119(10), 1182-1190. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6251033/?report=reader#!po=78.5714.
Korfage, I. J., Carreras, G., Christensen, C. M. A., Billekens, P., Bramley, L., Briggs, L., Bulli, … Van Delden, J. J. M. (2020). Advance care planning in patients with advanced cancer: a 6-country, cluster-randomised clinical trial. Plos Medicine, 17(11). https://journals.plos.org/plosmedicine/article?id=10.1371/journal.pmed.1003422.
Mendes, K. D. S., Silveira, R. C. D. C. P., & Galvão, C. M. (2008). Revisão integrativa: método de pesquisa para a incorporação de evidências na saúde e na enfermagem. Texto & contexto-enfermagem, 17, 758-764.
Midtbust, M. H., Alnes, R. E., Gjengedal, E., & Lykkeslet, E. (2018). Perceived barriers and facilitators in providing palliative care for people with severe dementia: the healthcare professionals’ experiences. BMC Health Services Research, 18(1), 1-10. https://bmchealthservres.biomedcentral.com/articles/10.1186/s12913-018-3515-x.
Pautex, S., Gamondi, C., Philippin, Y., Gremaud, G., Herrmann, F., Camartin, C., & Vayne-Bossert, P. (2018). Advance directives and end-of-life decisions in Switzerland: role of patients, relatives and health professionals. BMJ Supportive and Palliative Care, 8(4), 475-484. https://spcare.bmj.com/content/8/4/475.short.
Sánchez-García, M. R., Moreno-Rodríguez, M., Hueso-Montoro, C., Campos-Calderón, C., Varella-Safont, A., & Montoya-Juárez, R. (2017). Dificultades y factores favorables para la atención al final de la vida en residencias de ancianos: un estudio con grupos focales. Atención Primaria, 49(5), 278-285. 2017. https://dialnet.unirioja.es/servlet/articulo?codigo=5964968.
Selman, L. E., Brighton, L. J., Robinson, V., George, R., Khan, S. A., Burman, R., & Koffman, J. (2017). Primary care physicians’ educational needs and learning preferences in end-of-life care: a focus group study in the UK. BMC palliative care, 16(1), 1-9. https://link.springer.com/article/10.1186/s12904-017-0191-2.
Sercu, M., Renterghem, V. V., Pype, P., Aelbrecht, K., Derese, A., & Deveugele, M. (2015). “It is not the fading candle that one expects”: general practitioners’ perspectives on life-preserving versus “letting go” decision-making in end-of-life home care. Scandinavian Journal of Primary health care, 33(4), 233-242. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4750732/.
Sinclair, C., Auret, K. A., Evans, S. F., Williamson, F., Dormer, S., Wilkinson, A., ... Brims, F. (2017). Advance care planning uptake among patients with severe lung disease: a randomised patient preference trial of a nurse-led, facilitated advance care planning intervention. BMJ Open, 7(2), e013415. https://bmjopen.bmj.com/content/7/2/e013415.abstract.
Souza, M. T. de, Silva, M. D. da, & Carvalho, R. de. (2010) Integrative review: what is it? how to do it? Einstein, 8(1), 102-106. https://www.scielo.br/j/eins/a/ZQTBkVJZqcWrTT34cXLjtBx/abstract/?lang=pt.
Wang, Y., Zhang, Y., Hong, Y., Zeng, P., Hu, Z., Xu, X., & Wang, H. (2021). Advance directives and end-of-life care: knowledge and preferences of patients with brain Tumours from Anhui, China. BMC Cancer, 21(1), 1-10. Disponível em: https://link.springer.com/article/10.1186/s12885-020-07775-4.
Wichmann, A. B., Van Dam, H., Thoonsen, B., Boer, T. A., Engels, Y., & Groenewoud, A. S. (2018). Advance care planning conversations with palliative patients: looking through the GP’s eyes. BMC Family Practice, 19(1), 1-9. https://link.springer.com/article/10.1186/s12875-018-0868-5.
Ziehm, J., Farin, E., Schäfer, J., Woitha, K., Becker, G., & Köberich, S. (2016). Palliative care for patients with heart failure: facilitators and barriers-a cross sectional survey of German health care professionals. BMC health services research, 16(1), 1-10. https://bmchealthservres.biomedcentral.com/articles/10.1186/s12913-016-1609-x#Sec2.
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Copyright (c) 2022 Gabriela Carneiro Ramos Rocha; Adriana Bento Grobe; Alex Oliveira Rodrigues; Achaiane Camila da Silva dos Anjos; Eliana Rezende Adami
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