Transition from hospital to home: Concerns of family members and caregivers of the elderly in palliative care
DOI:
https://doi.org/10.33448/rsd-v13i5.45794Keywords:
Nursing; Patient discharge; Caregivers; Palliative care; Homebound persons; Health of the elderly.Abstract
Objectives: to describe the needs for guidance from family members and caregivers of the elderly in palliative care in the context of hospital discharge to the home. Method: a descriptive study with a qualitative approach. The research participants included family members and caregivers of patients in palliative care with indication and / or probability of indicating discharge from hospital to the home, aged 18 years or older. Results: concerns and feelings: anxiety; relief; concern about changing the routine and how care will be divided between other family members and caregivers and the fear of the patient dying at home. Doubts about the demands of home care were highlighted: oxygen therapy, care for pressure injuries and food. Conclusion: It is necessary to implement interventions that improve, among other issues, communication between professionals and the user in the preparation and education for care at home, with the provision of community support networks and early treatment of mourning.
References
Andrade, R. C., Marques, A. R., Leite, A. C. A. B., Martimiano, R. R., Santos, B. D. dos, Pan, R., Fernandes, A. M., Melo, E. M. de O. P. de, & Nascimento, L. C. (2015). Necessidades dos pais de crianças hospitalizadas: evidências para o cuidado. Rev. Eletr. Enferm. 17(2), 379–94. https://doi.org/10.5216/ree.v17i2.30041
Bone, A. E., Gomes, B., Etkind, S. N., Verne, J., Murtagh, F. E. M., Evans, C. J., & Higginson, I. J. (2018). What is the impact of population ageing on the future provision of end-of-life care? Population-based projections of place of death. Palliative medicine, 32(2), 329–336. https://doi.org/10.1177/0269216317734435
Costa, C. O., Branco, J. C., Vieira, I. S., Souza, L. D. d. M., & da Silva, R. A. (2019). Prevalência de ansiedade e fatores associados em adultos [Prevalence of anxiety and associated factors in adults]. Jornal Brasileiro de Psiquiatria, 68(2), 92–100. https://doi.org/10.1590/0047-2085000000232
Couto, A. M., Caldas, C. P., & de Castro, E. A. B. (2019). Home care for dependent elderly patients by caregivers with overload and stress / Cuidado domiciliar a idosos dependentes de cuidadores familiares com sobrecarga e desconforto emocional. Revista De Pesquisa Cuidado é Fundamental Online, 11(4), 944–950. https://doi.org/10.9789/2175-5361.2019.v11i4.944-950
Delalibera, M., Barbosa, A. Leal, I., & Presa, J. Sobrecarga no cuidar e suas repercussões nos cuidadores de pacientes em fim de vida: Revisão sistemática da literatura. (2014) Ciência & Saúde Coletiva. http://www.cienciaesaudecoletiva.com.br/artigos/sobrecarga-no-cuidar-e-suas-repercussoes-nos-cuidadores-de-pacientes-em-fim-de-vida-revisao-sistematica-da-literatura/15055?id=15055
Delalibera, M., Barbosa, A., Leal, I. (2018) Circunstâncias e consequências do cuidar: caracterização do cuidador familiar em cuidados paliativos. Ciência & Saúde Coletiva. 23(4), 1105-1117. http://dx.doi.org/10.1590/1413-81232018234.12902016.
Jesus, I. T. M. de., Orlandi, A. A. dos S., & Zazzetta, M. S. (2018). Burden, profile and care: caregivers of socially vulnerable elderly persons. Revista Brasileira De Geriatria E Gerontologia, 21(2), 194–204. https://doi.org/10.1590/1981-22562018021.170155
Jesus, I. T. M., Orlandi, A. A. S., Grazziano, E. S., & Zazzetta, M. S. (2017). Frailty of the socially vulnerable elderly. Acta Paul Enferm., 30(6), 614-620. https://doi.org/10.1590/1982-0194201700088.
Matos, M. R., Muniz, R. M., Barboza, M. C. N., Viegas, A. C., Rockembach, J. A., & Lindemann, L. G. (2017). Representações sociais do processo de adoecimento dos pacientes oncológicos em cuidados paliativos. Revista de Enfermagem da UFSM, 7(3), 398–410. https://doi.org/10.5902/2179769225801
Medyńska, A., Wasilewska, A., Kiliś-Pstrusińska, K., & Chmielewska, I. B. Psychosocial aspects of children and families treated with hemodialysis. (2013) Pediatric Nephrology, 28(11). http://dx.doi.org/ 10.1007/s00467-013-2532-6
Montenegro R. C. F. (2017). Idosos em situação de dependência: quem cuida? elementos para o debate [Tese de Doutorado, Universidade Católica de São Paulo]. Repositório PUCSP. https://repositorio.pucsp.br/jspui/handle/handle/20240
Oliveira, P. M., Oliveira, S. G., Junior, J. R. G. S., & Crizel, L. B. (2016). Visão do familiar cuidador sobre o processo de morte e morrer no domicílio. Revista Baiana De Enfermagem, 30(4). https://doi.org/10.18471/rbe.v30i4.16405
Pessalacia, J. D., Silva, A. E., Quadros Araújo, D. H., De Lacerda, M. A., & Dos Santos, K. C. (2018). Experiências de cuidadores nos cuidados paliativos e redes de suporte. Revista de Enfermagem UFPE on line.12(11), 2916-2922. https://doi.org/10.5205/1981-8963-v12i11a236208p2916-2922-2018
Polit, D. F., & Beck, C. T. (2019) Fundamentos da pesquisa em enfermagem: avaliação de evidências para a prática de enfermagem. (9a ed.) ArtMed.
Sollero-de-Campos, F., & Braga, R. C. (2020). Quando a morte ocorre no domicílio. Revista M. Estudos Sobre a Morte, Os Mortos E O Morrer, 4(8), 419–433. https://doi.org/10.9789/2525-3050.2019.v4i8.419-433
Vasconcelos, G. B., & Pereira, P. M. (2018). Cuidados paliativos em atenção domiciliar: uma revisão bibliográfica. Revista de Administração em Saúde, 18(70). http://dx.doi.org/10.23973/ras.70.85
Weber, L., Lima, M., Acosta, A., & Marques, G. (2017). Transição do cuidado do hospital para o domicílio: revisão integrativa. Cogitare Enfermagem, 22(3). http://dx.doi.org/10.5380/ce.v22i3.47615
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Copyright (c) 2024 Jessica Maria de Almeida Rosa; Maria Luiza de Oliveira Teixeira; Elen Martins da Silva Castelo Branco; Barbara Martins Correa da Silva ; Christiany Moçali Gonzalez
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