The training and experience of health professionals facing the process of death and dying in pediatrics: An integrative review

Authors

DOI:

https://doi.org/10.33448/rsd-v10i9.17790

Keywords:

Death; Health personnel; Child; Patient care team.

Abstract

This study aimed to analyze the evidence found in the national and international scientific literature, regarding the process of death and dying in pediatrics in terms of academic training and practical experience of health professionals. This is an integrative review, supported by the PRISMA recommendation. The search was carried out from August to December 2020, through the databases: PubMed, LILACS, Scielo and CINAHL, applying the following filters: full articles published between 2010 and 2020, in English, Portuguese and Spanish and using the descriptors: “death/death”, health personnel/health personnel”, “child/child”, “patient care team/patient care team”. The final study sample consisted of 26 articles. In analyzing the publications, the articles were classified into three units of analysis, namely: the training process as a facilitator to deal with the process of death and dying, the experience of professionals in the face of family grief in pediatrics and terminality and palliative care in pediatrics. The study allowed us to state that the fact that death is still considered a taboo for society ends up perpetuating the lack of discussion and reflection on the process of death and dying in academia. Thus, health professionals do not feel effectively able to deal with the process of death and dying in pediatrics, mainly due to the lack of contact with this issue during undergraduate and even graduate studies and later, due to the lack of support in care institutions.

References

Aho, A. L., Tarkka, M. T., Astedt-kurki, P., Sorvali, L., & Kaunonen, M. (2011). Evaluating a bereavement follow-up intervention for grieving fathers and their experiences of support after the death of a child--a pilot study. Death Stud. 35(10):879-904. https://doi.org/10.1080/07481187.2011.553318

Alves, M. V. M. F. F., Nunes, D. S., Bronzatto, C. H. L., Trevizani M. J. N., & Toso, L. A. R. (2012). Morte e morrer em unidade de terapia intensiva pediátrica: percepção dos profissionais de saúde. Cogitare Enfermagem, 17, 543-548. http://dx.doi.org/10.5380/ce.v17i3.29296

Barbosa, L. & Carvalho, I. S. (2016). A perspectiva de residentes sobre a morte e seu reflexo na relação com os pacientes. Rev. SBPH, 19, 107-128. http://pepsic.bvsalud.org/scielo.php?script=sci_arttext&pid=S1516-08582016000200008

Bouri, M., Papadatou, D., Koukoutsakis, P., Bitsakou, P., & Kafetziz, D. (2017). The Impact of Pediatric Palliative Care Training on the Death Attitudes of Health Professionals. International Journal of Caring Sciences, 10, 676-681. https://www.researchgate.net/publication/320345385

Brinkman-Stoppelenburg, A., Onwuteaka-Philipsen, B. D., & Van, D. H. A. (2015). Involvement of supportive care professionals in patient care in the last month of life. Support Care Cancer. ;23(10):2899-906. http://dx.doi.org/10.1007/s00520-015-2655-3

Ffrench-o’Carrol, R., Feeley, T., Crowe, S., & Doherty, E. M. (2019). Grief reactions and coping strategies of trainee doctors working in paediatric intensive care. Br J Anaesth.; 123(1):74-80. http://dx.doi.org/10.1016 / j.bja.2019.01.034

Forster, E. M. & Hafiz, A. (2015). Paediatric death and dying: exploring coping strategies of health professionals and perceptions of support provision. Int J Palliat Nurs.; 21(6):294-301. http://dx.doi.org/10.12968/ijpn.2015.21.6.294

Forster, E. M. & Windsor, C. (2014). Speaking to the deceased child: Australian health professional perspectives in paediatric end-of-life care. Int J Palliat Nurs. ;20(10):502-8. http://dx.doi.org/10.12968/ijpn.2014.20.10.502

Garcia, S. V. & Rivas, R. E. (2013). Experiência de enfermeiros pediátricos intensivos na morte de uma criança: experiências, lesão, aspectos bioéticos. Ciência. doente, Concepción, 19, 111-124. http://dx.doi.org/10.4067/S0717-95532013000200011.

Hendricks-Ferguson, V. L., Sawin, K. J., Montgomery, K., Dupree, C., Phillips-Salimi, C. R., CARR, B., & Haase, J. E. (2015). Novice Nurses' Experiences With Palliative and End-of-Life Communication. J Pediatr Oncol Nurs. ;32(4):240-52. http://dx.doi.org/10.1177/1043454214555196

Kukora, S., Keefer, P., Pituch, K., & Firn, J. (2019). Thematic Analysis of Interprofessional Provider Perceptions of Pediatric Death. Journal of Pediatric Nursing 47: 92-99. http://dx.doi.org/10.1016 / j.pedn.2019.05.002

Lima, M. J. V. & Andrade, N. M. (2017). A atuação do profissional de saúde residente em contato com a morte e o morrer. Saude soc., 26, 958-972. https://www.scielo.br/scielo.php?pid=S010412902017000400958&script=sci_abstract&tlng=pt

Lima, R., Borsatto, A. Z., Vaz, D. C., Pires, A. C. F., Cypriano, V. P., & Ferreira, M. A. (2017). A morte e o processo de morrer: ainda é preciso conversar sobre isso. Rev Min Enferm.; 21:e-1040. http://www.dx.doi.org/10.5935/1415-2762.20170050

Marques, C. D. C., Veronez, M., Sanches, M. R., & Higarashi, I. H. (2013). Significados atribuídos pela equipe de enfermagem em unidade de terapia intensiva pediátrica ao processo de morte e morrer. REME rev. min. Enferm; 17(4): 823-830. http://www.dx.doi.org/10.5935/1415-2762.20130060

Meert K. L., Eggly S., Kavanaugh K., Berg R. A., Wessel D. L., Newth C. J., Shanley T. P., Harrison R., Dalton H., Dean J. M., Doctor A., Jenkins T., & Park C. L (2015). Meaning making during parent-physician bereavement meetings after a child's death. Health Psychol. 34(4):453-61. http://www.dx.doi.org/10.1037/hea0000153.

Nascimento, D. M., Rodrigues, T. G., Soares, M. R., Rosa, M. L. S., Viegas, S. M. F., & Salgado, P. O. (2013). Experiência em cuidados paliativos à criança portadora de leucemia: a visão dos profissionais. Ciênc. saúde coletiva, 18, 2721-2728. https://www.redalyc.org/articulo.oa?id=63028227027

Pacheco, C. L. & Goldim, J. R. (2019). Percepções de equipe interdisciplinar sobre cuidados paliativos em oncologia pediátrica. Rev. Bioét., 27, 67-75. http://dx.doi.org/10.1590/1983-80422019271288

Poles, K. & Bousso, R. S. (2006). Compartilhando o processo de morte com a família: uma experiência de enfermeira na UTI pediátrica. Rev. Latino-Am. Enfermagem, 14, 207-213. http://dx.doi.org/10.1590/S0104-11692006000200009

Price, J., Jordan, J., & Prior, L. (2013). A Consensus for Change: Parent and Professional Perspectives on Care for Children at the End-Of-Life. Questões em Enfermagem Pediátrica Abrangente 36 (1-2). http://dx.doi.org/10.3109 / 01460862.2013.779765

Scaratti, M., Oliveira, D.R., Rós, A. R., Debon, R., & Baldissera, C. (2019). Do Diagnóstico a Terminalidade: Enfrentamento da Equipe Multiprofissional na Oncologia Pediátrica. Rev Fund Care Online. 311-316. http://dx.doi.org/10.9789/2175-5361.2019.v11i2.311-316

Silva, A. F., Issi, H. B., Motta, M. G. C., & Botene, D. Z. A. (2015). Cuidados paliativos em oncologia pediátrica: percepções, saberes e práticas na perspectiva da equipe multiprofissional. Rev. Gaúcha Enferm., 36, 56-62. http://dx.doi.org/10.1590/1983- 1447.2015.02.46299

Silva, L. C. S. P., Valença, C. N., & Germano, R. M. (2010). Percepções dos profissionais de enfermagem intensiva frente a morte do recém-nascido. Rev. bras. enferm., 63, 238-242. http://dx.doi.org/10.1590 / S0034-71672010000200011

Snaman, J. M., Kaye, E. C., Torres, C., Gibson, D. V., & Baker, J. N (2016). Helping parents live with the hole in their heart: The role of health care providers and institutions in the bereaved parents' grief journeys. Cancer. 1;122(17):2757-65. http://dx.doi.org/10.1002 / cncr.30087

Souza, L. F., Misko, M. D., Silva, L., Poles, K., Santos, M. R., & Bousso, R. G. (2013). Morte digna da criança: percepção de enfermeiros de uma unidade de oncologia. Rev. esc. enferm. USP, 47, 30-37. http://www.redalyc.org/articulo.oa?id=361033324004

Souza, M. T., Silva, M. D., & Carvalho, R. (2010). Revisão Integrativa: O que é e como fazer. Einstein, 8(1 Pt 1):102-6. http://www.scielo.br/pdf/eins/v8n1/pt_1679-4508-eins-8-1-0102

Souza, P. S. N. & Conceição, A. O. F. (2018). Processo de morte em unidade de terapia intensiva pediátrica. Rev. Bioét., 26, 127-134. http://dx.doi.org/10.1590/1983-80422018261234

Troncoso, M. P., Romero, B. P., & Schnake, M. C. (2020). Reflexión bioética al cuidar un niño que enfrenta la muerte. Rev. Bioét., 28, 281-287. http://dx.doi.org/10.1590/1983-80422020282390

Trowbridge, A., Bamat, T., Griffis, H., McConathey, E., Feudtner, C., & Walter, J. K. (2020). Pediatric Resident Experience Caring for Children at the End of Life in a Children's Hospital. 20 (1): 81-88. http://dx.doi.org/10.1016/j.acap.2019.07.008

Tubbs-Cooley, H. L., Santucci, G., Kang, T. I., Feinstein, J. A., Hexem, K. R., & Feudtner, C. (2011). Avaliações individuais e em grupo de enfermeiras pediátricas sobre cuidados paliativos, de fim de vida e de luto. J Palliat Med.; 14 (5): 631-7. http://dx.doi.org/10.1089/jpm.2010.0409

Veja-vega, P., Rodríguez, R. G., Encina, M. E. L., González, E. A., Aldunate, P. C., Suárez, L. R., & Briones, X. G. (2019). Perception of support in professional's and technician's grief of pediatric intensive care units in public hospitals. Rev Chil Pediatr. 90(4):429-436. http://dx.doi.org/10.32641 / rchped.v90i4.1010

Whittemore, R. & Knafl, K. The Integrative Review: Updated Methodology. J AdvNurs, 52(5):546–53. https://doi.org/10.1111/j.1365-2648.2005.03621.x

Published

20/07/2021

How to Cite

AZEVEDO, T. G. L. de; LIMA, B. S. F. .; MARTINEZ, E. A. . The training and experience of health professionals facing the process of death and dying in pediatrics: An integrative review. Research, Society and Development, [S. l.], v. 10, n. 9, p. e2310917790, 2021. DOI: 10.33448/rsd-v10i9.17790. Disponível em: https://rsdjournal.org/index.php/rsd/article/view/17790. Acesso em: 16 apr. 2024.

Issue

Section

Health Sciences