Analysis of the quality of life and burden of family caregivers of elderly people assisted by home care
DOI:
https://doi.org/10.33448/rsd-v11i11.33853Keywords:
Needs Assessment; Quality of Life; Caregivers; Family; Health services.Abstract
Objective: to analyze the variables that affect the worsening of the quality of life and the increase in the burden among family caregivers of dependent elderly people assisted by a public home care service. Methodology: a cross-sectional, quantitative study carried out with 143 family caregivers of the elderly, between September 2017 and August 2019. Data collection and analysis took place using a sociodemographic, economic and clinical questionnaire, and the Zarit Burden Interview (overload) and World Health Organization Quality of Life-BREF (quality of life) scales. Descriptive analysis was performed, as well as comparison statistics. Results: Most were women (87.4%), with moderate burden (41.8%) or moderate to severe (35.0%), average quality of life, sick (68.5%), with frequent pain (52.4%), who used continuous medication (61.5%), including analgesics (55.2%) and anxiolytics/antidepressants (25.2%), with sleep problems (76.9%), walking (37.8%) and financial (35.7%), who did not perform physical activities (81.8%) and leisure activities (76.9%) and had little social support. In the comparison tests, it was evidenced how these variables had an impact on a decrease in physical, emotional, social and environmental quality of life, and on an increase in overload.Conclusion: It is essential to pay close attention to the physical, psychological, social and environmental needs of family caregivers, to devise strategies that aim to involve other family members, society, health services and public authorities for the inclusion of family caregivers in the care plan.
References
Aktürk, Ü., Aktürk, S., & Erci, B. (2019). The effects of depression, personal characteristics, and some habits on physical activity in the elderly. Perspectives in psychiatric care, 55(1), 112-118. doi: https://doi.org/10.1111/ppc.12322
Anjos, K. F. D., Boery, R. N. S. D. O., & Pereira, R. (2014). Quality of life of relative caregivers of elderly dependents at home. Texto & Contexto-Enfermagem, 23(3), 600-608.doi: http://dx.doi.org/10.1590/0104-07072014002230013
Anjos, K. F. D., Boery, R. N. S. D. O., Pereira, R., Pedreira, L. C., Vilela, A. B. A., Santos, V. C., & Rosa, D. D. O. S. (2015). Association between social support and quality of life of relative caregivers of elderly dependents. Ciência & saúde coletiva, 20(5), 1321-1330. doi: http://dx.doi.org/10.1590/1413-81232015205.14192014
Areosa, S. V. C., Henz, L. F., Lawisch, D., & Areosa, R. C. (2014). Take care of oneself and other: study of elderly caregivers. Psicol Saúde Doenças, 15(2), 482-94. doi: http://dx.doi.org/10.15309/14psd150212
Braga, P. P., Sena, R. R., Seixas, C. T., Castro, E. A. B., Andrade, A. M., & Silva, Y. C. (2016). Supply and demand in home health care. Ciência & saúde coletiva, 21(3), 903-912. doi: http://dx.doi.org/10.1590/1413-81232015213.11382015
Brasil. Ministério da Saúde (BR) (2016). Portaria nº 825, de 25 de Abril de 2016. Redefine a Atenção Domiciliar no âmbito do Sistema Único de Saúde (SUS) e atualiza as equipes habilitadas. Brasília: Ministério da Saúde. Disponível em: http://bvsms.saude.gov.br/bvs/saudelegis/gm/2016/prt0825_25_04_2016.html
Briceño, C., Pérez, N., Carvallo, S., Nuñez, N., Silva, M. I., Álvarez, E., & Vidal, L. (2015). Percepciones de las personas que participan en el programa adulto mayor dependiente de la fundación Cerro Navia Joven: una mirada desde la ocupación. Revista Chilena de Terapia Ocupacional, 15(1), 109-122. Available from: https://revistaterapiaocupacional.uchile.cl/index.php/RTO/article/view/37135/3 8711
Caldas, C. P. (2003). Aging with dependence: family needs and responsibilities. Cadernos de Saúde Pública, 19(3), 733-781. doi: http://dx.doi.org/10.1590/S0102-311X2003000300009
Carvalho, D. P., Toso, B. R. G. D. O., Viera, C. S., Garanhani, M. L., Rodrigues, R. M., & Ribeiro, L. D. F. C. (2015). Caregivers and implications for home care. Texto & Contexto-Enfermagem, 24(2), 450-458. doi: http://dx.doi.org/10.1590/0104-07072015000782014
Chibante, C. L. P., Santo, F. H. E., & Aquino, A. C. O. (2015). The reactions of the family companion of hospitalized elderly facing stressful situations. Revista de Pesquisa Cuidado é Fundamental Online, 7(3), 2961-2973. doi: http://dx.doi.org/10.9789/2175-5361.2015.v7i3.2961-2973
Costa, T. F. D., Costa, K. N. D. F. M., Fernandes, M. D. G. M., Martins, K. P., & Brito, S. D. S. (2015). Quality of life of caregivers for patients of cerebrovascular accidents: association of (socio-demographic) characteristics and burden. Revista da Escola de Enfermagem da USP, 49(2), 0245-0252. doi: http://dx.doi.org/10.1590/S0080-623420150000200009
Costa, T. F. D., Gomes, T. M., Viana, L. R. D. C., Martins, K. P., & Costa, K. N. D. F. M. (2016). Stroke: patient characteristics and quality of life of caregivers. Revista brasileira de enfermagem, 69, 933-939. doi: http://dx.doi.org/10.1590/0034-7167-2015-0064
Couto, A. M. D., Castro, E. A. B. D., & Caldas, C. P. (2016). Experiences to be a family caregiver of dependent elderly in the home environment. Northeast Netw Nurs J [Internet], 17(1), 76–85. doi: http://dx.doi.org/10.15253/2175-6783.2016000100011
Dantas, T. M., Rodrigues, L. B., Santos, W. S. D., Dias, J. C., Santana, N. M. D., & Lima, I. C. V. D. (2015). Perceptions and experiences of family caregivers of bedridden elderly. Brazilian Journal in Health Promotion, 28(3), 411-417. doi: http://dx.doi.org/10.5020/18061230.2015.p411
Diniz, A. S. S., Silva, L. F., Coutinho, N. P. S., Ribeiro, A. C. S., Diniz, J. A. R., Dias, R. S., & Sardinha, A. H. L. (2016). Test of elder insert capacity in household care program in São Luís, Maranhão, Brazil. Rev Pesq Saúde, 17(2), 74-79. Available from: http://www.periodicoseletronicos.ufma.br/index.php/revistahuufma/article/view /6079/3666
Fernandes, M. D. G. M., & Loureiro, L. D. S. N. (2015). Perfil do cuidador familiar de idosos dependentes em convívio domiciliar. Revista de Pesquisa Cuidado é Fundamental Online, 7(5), 145-154.doi: http://dx.doi.org/10.9789/2175-5361.2015.v7i5.145-154
Fleck, M., Louzada, S., Xavier, M., Chachamovich, E., Vieira, G., Santos, L., & Pinzon, V. (2000). Application of the Portuguese version of the abbreviated instrument of quality life WHOQOL-bref. Revista de saúde pública, 34(2):178–83. doi: http://dx.doi.org/10.1590/S0034-89102000000200012
Fuhrmann, A. C., Bierhals, C. C. B. K., Santos, N. O. D., & Paskulin, L. M. G. (2015). Association between the functional capacity of dependant elderly people and the burden of family caregivers. Revista Gaúcha de Enfermagem, 36(1), 14-20.doi: http://dx.doi.org/10.1590/1983-1447.2015.01.49163
Hirata, H. (2016). Mulheres brasileiras: relações de classe, de “raça” e de gênero no mundo do trabalho. Confins. Revista franco-brasilera de geografia, (26). doi: http://dx.doi.org/10.4000/confins.10754
Lino, V. T. S., Rodrigues, N. C. P., Camacho, L. A. B., OʼDwyer, G., Lima, I. S. D., Andrade, M. K. D. N., & Atie, S. (2016). Prevalence of overburden in caregivers of dependent elderly and associated factors in a poor area of Rio de Janeiro, Brazil. Cad Saúde Pública, 32(6), e00060115. doi: http://dx.doi.org/10.1590/0102-311X00060115
Llano, P. M. P., Santos, F. D., Rodrigues, M. C. T., Lemões, M. A. M., Lange, C., & Santos, S. S. C. (2016). The family in the care process of an elderly after a fall accident. Revista de Pesquisa: Cuidado é Fundamental Online, 8(3), 4717-4724. doi: http://dx.doi.org/10.9789/2175-5361.2016.v8i3.4717-4724
Lopes, G. L., & Santos, M. I. P. D. O. (2015). Functionality elderly enrolled in a Family Health Strategy unit according to the level of the International Classification of Functioning. Revista Brasileira de Geriatria e Gerontologia, 18(1), 71-83. doi: http://dx.doi.org/10.1590/1809-9823.2015.14013
Loredo-Figueroa, M. T., Gallegos-Torres, R. M., Xeque-Morales, A. S., Palomé-Vega, G., & Juárez-Lira, A. (2016). Level of dependency, self-care, and quality of life in the Elder adult. Enfermería universitaria, 13(3), 159-165.doi: https://doi.org/10.1016/j.reu.2016.05.002
Marin, M. J. S., Cecílio, L. C. D. O., Perez, A. E. W., Santella, F., Silva, C. B. A., Gonçalves Filho, J. R., & Roceti, L. C. (2008). Use of medicines by the elderly in a Family Health Program unit in Brazil. Cadernos de Saúde Pública, 24, 1545-1555. doi: http://dx.doi.org/10.1590/S0102-311X2008000700009
Martínez, R. T. S., Cardona, E. M. M., & Gómez-Ortega, O. R. (2016). Nursing interventions to reduce overload in caregivers. Revista Cuidarte, 7(1), 1171-1184.doi: http://dx.doi.org/10.15649/cuidarte.v7i1.251
Minosso, J. S. M., Amendola, F., Alvarenga, M. R. M., & Oliveira, M. A. D. C. (2010). Validation of the Barthel Index in elderly patients attended in outpatient clinics, in Brazil. Acta Paulista de Enfermagem, 23(2), 218–23. doi: http://dx.doi.org/10.1590/S0103-21002010000200011
Miranda, A. C. D. C., Sérgio, S. R., Fonseca, G. N. S., Coelho, S. M. C., Rodrigues, J. S., Cardoso, C. L., & Cassiano, J. G. (2015). Evaluation of the presence of family caregivers of elderly with cognitive and functional deficits living in Belo Horizonte-MG, Brazil. Revista Brasileira de Geriatria e Gerontologia, 18(1), 141-150. doi: http://dx.doi.org/10.1590/1809-9823.2015.13173
Navarro-Sandoval, C., Uriostegui-Espíritu, L. C., Delgado-Quiñones, E. G., & Sahagún-Cuevas, M. N. (2017). Depression and burden on primary caregivers of elderly persons with physical dependence of the UMF 171. Revista Medica Del Instituto Mexicano Del Seguro Social, 55(1), 25-31. Available from: http://www.medigraphic.com/pdfs/imss/im-2017/im171i.pdf
Pereira, L. S. M., & Soares, S. M. (2015). Factors influencing the quality of life of family caregivers of the elderly with dementia. Ciência & saúde coletiva, 20(12), 3839-3851. DOI: http://dx.doi.org/10.1590/1413-812320152012.15632014
Reis, L. A., Neri, J. D. C., Araújo, L. L., Lopes, A. O. S., & Cândido, A. S. C. (2015). Quality of life of formal caregivers of the elderly. Rev Baiana Enferm, 29(2), 156-163. doi: http://dx.doi.org/10.18471/rbe.v29i2.12548
Rodríguez, B. C., Castiñeira, B. R., & Nunes, L. C. (2019). Alzheimer's disease and the quality of life of the informal caregiver. Revista espanola de geriatria y gerontologia, 54(2), 81-87. doi: https://doi.org/10.1016/j.regg.2018.10.008
Rodríguez-Pérez, M., Abreu-Sánchez, A., Rojas-Ocaña, M. J., & del-Pino-Casado, R. (2017). Coping strategies and quality of life in caregivers of dependent elderly relatives. Health and Quality of life Outcomes, 15(1), 1-8. doi: http://dx.doi.org/10.1186/s12955-017-0634-8
Rokicka, M., & Zajkowska, O. (2020). Informal elderly caregiving and time spent on leisure: evidence from time use survey. Ageing International, 45(4), 393-410. doi: https://doi.org/10.1007/s12126-020-09396-5
Santos, R. L., & Virtuoso Júnior, J. S. (2008). Reliability of the Brazilian version of the Scale of Instrumental Activities of Daily Living. Revista Brasileira em Promoção da Saúde, 21(4), 290–6. Available from: http://hp.unifor.br/pdfs_notitia/2974.pdf
Scazufca, M. (2002). Brazilian version of the Burden Interview scale for the assessment of burden of care in carers of people with mental illnesses. Brazilian Journal of Psychiatry, 24(1):12-17. doi: http://dx.doi.org/10.1590/S1516-44462002000100006
Secoli, S. R. (2010). Polypharmacy: interaction and adverse reactions in the use of drugs by elderly people. Revista brasileira de enfermagem, 63, 136-140. doi: http://dx.doi.org/10.1590/S0034-71672010000100023
Souza, I. D., Pereira, J. D. A., & Silva, E. M. (2018). Between State, society and family: the care of female caregivers. Revista Brasileira de Enfermagem, 71(Suppl 6), 2720-27. doi: http://dx.doi.org/10.1590/0034-7167-2018-0111
Sousa, J. I. S, Silva, B. T., Rosa, B. M., Garcia, E. D. Q. M., & Roque, T. S. (2020). Sobrecarga de trabalho em familiares de idosos em cuidados paliativos. Research, society and development, 9(4), e146943001-e146943001. doi: http://dx.doi.org/10.33448/rsd-v9i4.3001
Souza, L. R. D., Hanus, J. S., Dela Libera, L. B., Silva, V. M., Mangilli, E. M., Simões, P. W., ... & Tuon, L. (2015). Overload in care, stress and impact on the quality of life of surveyed caregivers assisted in primary care. Cadernos Saúde Coletiva, 23(2), 140-149. doi: http://dx.doi.org/10.1590/1414-462X201500020063
Torres-Gil, F. M. (2017). The evolution of gerontology and geriatrics in an era of a politics of aging. Gerontology & geriatrics education, 38(4), 438-442. doi: https://doi.org/10.1080/02701960.2016.1232594
Veras, R., & Oliveira, M. (2016). Care pathway for the elderly: detailing the model. Revista Brasileira de Geriatria e Gerontologia, 19(6), 887-905. doi: http://dx.doi.org/10.1590/1981-22562016019.160205
Zaleski, A. L., Taylor, B. A., Panza, G. A., Wu, Y., Pescatello, L. S., Thompson, P. D., & Fernandez, A. B. (2016). Coming of age: considerations in the prescription of exercise for older adults. Methodist DeBakey Cardiovascular Journal, 12(2), 98. doi: http://dx.doi.org/10.14797/mdcj-12-2-98
WHO. World Health Organization. (1995). The World Health Organization quality of life assessment (WHOQOL): position paper from the World Health Organization. Soc Sci Med, 41(10),1403–9. doi: https://doi.org/10.1016/0277-9536(95)00112-K
Downloads
Published
How to Cite
Issue
Section
License
Copyright (c) 2022 Jéssica de Aquino Pereira; Irene Duarte Souza; Jennifer Bazilio; Maura Cristiane e Silva Figueira; Eliete Maria Silva
This work is licensed under a Creative Commons Attribution 4.0 International License.
Authors who publish with this journal agree to the following terms:
1) Authors retain copyright and grant the journal right of first publication with the work simultaneously licensed under a Creative Commons Attribution License that allows others to share the work with an acknowledgement of the work's authorship and initial publication in this journal.
2) Authors are able to enter into separate, additional contractual arrangements for the non-exclusive distribution of the journal's published version of the work (e.g., post it to an institutional repository or publish it in a book), with an acknowledgement of its initial publication in this journal.
3) Authors are permitted and encouraged to post their work online (e.g., in institutional repositories or on their website) prior to and during the submission process, as it can lead to productive exchanges, as well as earlier and greater citation of published work.
