Educational Technologies for patients and family in Palliative Care: An integrative review
DOI:
https://doi.org/10.33448/rsd-v10i8.17175Keywords:
Palliative Care; Educational Technology; Family.Abstract
Educational technologies are tools that help transmit knowledge and can be used in different contexts. Given its potential to resolve doubts and develop skills, this research aimed to identify scientific evidence in the literature about the use of educational technologies on palliative care designed for cancer patients and their families. This is an integrative literature review, with the following PICo strategy: “What educational technologies (I) are being developed on Palliative Care (Co) for patients and their families (P)?”. The established time frame comprised the period from 2015 to 2021, in the MEDLINE databases via National Library of Medicine National Institutes of Health (PubMed), Literatura Latino Americana e do Caribe em Ciências da Saúde (LILACS), Scientific Electronic Library Online (SCIELO) and in the Nursing Database (BDENF) via the Biblioteca Virtual em Saúde (BVS). The Health Sciences Descriptors (Decs/MESH) “educational technology”, “Health Education”, “caregivers”, “patients” and “Palliative Care” in Portuguese, English and Spanish were used. The interaction of descriptors was performed by the Boolean operators AND and OR. 14 studies were selected. Through the analysis, it was possible to divide into four categories that evidenced technologies aimed at concepts and guidelines of care, for caring for the caregiver, to assist in decision making and to aid communication. It is concluded, therefore, that educational technologies are important tools to assist in the education process, helping professionals to introduce the subjects and also serving as a source of consultation in times of doubts and uncertainties. It is necessary to develop different technologies that consider the different age groups, specificities involving regionality and cultural diversities.
References
Áfio, A. C. E., Balbino, A. C., Alves, M. D. S., Carvalho, L. V. D., Santos, M. C. L., & Oliveira, N. R. (2014). Análise do conceito de tecnologia educacional em enfermagem aplicada ao paciente. Rev. Rene, 15(1), 158-65. 10.15253/2175-6783.2014000100020.
Barros, G. A. M., Lopes, D. S., & Cardoso, M. G. M (2018). Informação e Comunicação em Cuidados Paliativos. In: Mattos S.L.L., Azevedo M.P., Cardoso M.G.M., Nunes R.R. (editores). Dor e Cuidados Paliativos. Rio de Janeiro: Sociedade Brasileira de Anestesiologia/ SBA. p. 141-158.
Campo C. F. C. & Fígaro R. A. (2021) Relação Médico-Paciente vista sob o olhar da Comunicação e Trabalho. Rev. Bras. Med Farm Comunidade. 16(43):2352. https://doi.org/10.5712/rbmfc16(43)2352
Cavalcanti, A. E. S., Netto, J. J. M., Martins, K. M. C., Rodrigues, A. R. M., Goyanna, N. F., & Aragão, O. C. (2018). Percepção de cuidadores familiares sobre cuidados paliativos. Arquivos de Ciências da Saúde, 25(1), 24-28. https://doi.org/10.17696/2318-3691.25.1.2018.685.
Chung, K., Augustin, F., & Esparza, S. (2017). Development of a Spanish-language hospice video. American Journal of Hospice and Palliative Medicine®, 34(8), 737-743. https://doi.org/10.1177/1049909116658022.
Cruz-Oliver, D. M., Malmstrom, T. K., Fernández, N., Parikh, M., García, J., & Sanchez-Reilly, S. (2016). Education intervention “Caregivers Like Me” for Latino family caregivers improved attitudes toward professional assistance at end-of-life care. American Journal of Hospice and Palliative Medicine®, 33(6), 527-536. https://doi.org/10.1177/1049909115584315
Dadalto, E. V., & Cavalcante, F. G. (2021). O lugar do cuidador familiar de idosos com doença de Alzheimer: uma revisão de literatura no Brasil e Estados Unidos. Ciência & Saúde Coletiva, 26, 147-157. https://doi.org/10.1590/1413-81232020261.38482020
Dharmarajan, K. V., Walters, C. B., Levin, T. T., Milazzo, C. A., Monether, C., Rawlins-Duell, R., Tickoo, R., Spratt, D. E., Lovie, S., Giannantoni-Ibelli, G., McCormick, B. A video decision aid improves informed decision-making in patients with advanced cancer considering palliative radiation therapy, Journal of Pain and Symptom Management (2019), https://doi.org/10.1016/ j.jpainsymman.2019.08.014. https://doi.org/10.1016/j.jpainsymman.2019.08.014
Duggleby, W., Ruiz, K. J., Ploeg, J., McAiney, C., Peacock, S., Nekolaichuk, C. et al. (2018). Mixed-methods single-arm repeated measures study evaluating the feasibility of a web-based intervention to support family carers of persons with dementia in long-term care facilities. Pilot and feasibility studies, 4(1), 1-12.
Ekberg, S., Herbert, A., Johns, K., Tarrant, G., Sansone, H., Yates, P. et al (2020). Finding a way with words: Delphi study to develop a discussion prompt list for paediatric palliative care. Palliative medicine, 34(3), 291-299. https://doi.org/10.1177/0269216319888988
Freytag, J., Street Jr, R. L., Barnes, D. E., Shi, Y., Volow, A. M., Shim, J. K. et al (2020). Empowering older adults to discuss advance care planning during clinical visits: the PREPARE randomized trial. Journal of the American Geriatrics Society, 68(6), 1210-1217. https://doi.org/10.1111/jgs.16405
Gigante, V. C. G., de Oliveira, R. C., Ferreira, D. S., Teixeira, E., Monteiro, W. F., de Oliveira Martins et al(2021). Construção e validação de tecnologia educacional sobre consumo de álcool entre universitários. Cogitare Enfermagem, 26. http://dx.doi.org/10.5380/ce.v26i0.71208
Graul, A., Haggerty, A., Stickley, C., Kumar, P., Morales, K., Bogner, H et al. (2020). Effect of patient education on palliative care knowledge and acceptability of outpatient palliative care services among gynecologic oncology patients: A randomized controlled trial. Gynecologic oncology, 156(2), 482-487. https://doi.org/10.1016/j.ygyno.2019.11.023
Holm, M., Årestedt, K., Carlander, I., Fürst, C. J., Wengström, Y., Öhlen, J. et al. (2016). Short‐term and long‐term effects of a psycho‐educational group intervention for family caregivers in palliative home care–results from a randomized control trial. Psycho‐oncology, 25(7), 795-802. https://doi.org/10.1002/pon.4004
Mello, J., de Oliveira, D. A., Hildebrandt, L. M., Jantsch, L. B., Begnini, D., & Leite, M. T. (2021). Vivências de cuidadores ante o processo de adoecimento por câncer de seu familiar. Revista de Enfermagem da UFSM, 11, 17. 10.5902/2179769244116
Melnyk BM, Fineout-Overholt E. (2005). Making the case for evidence-based practice.In: Melnyk BM, Fineout-Overholt E. Evidencebased practice in nursing & healthcare. A guide to best practice. Philadelphia: Lippincot Williams & Wilkins;.3-24.
Mendes, K. D. S., Silveira, R. C. D. C. P., & Galvão, C. M. (2008). Revisão integrativa: método de pesquisa para a incorporação de evidências na saúde e na enfermagem. Texto & contexto-enfermagem, 17(4), 758-764. https://doi.org/10.1590/S0104-07072008000400018.
Moraes Rocha, E., Paes, R. A., Moraes Sthal, G., & Souza, A. (2019). Cuidados Paliativos: Cartilha educativa para cuidadores de pacientes oncológicos. Clinical & Biomedical Research, 39(1).
Ouchi, K., Knabben, V., Rivera-Reyes, L., Ganta, N., Gelfman, L. P., Sudore, R., & Hwang, U. (2017). Preparing older adults with serious illness to formulate their goals for medical care in the emergency department. Journal of palliative medicine, 20(4), 404-408. 10.1089 / jpm.2016.0109.
Shalev, A., Phongtankuel, V., Reid, M. C., Czaja, S. J., Dignam, R., Baughn, R. et al. (2019). Home hospice caregivers’ perceived information needs. American Journal of Hospice and Palliative Medicine®, 36(4), 302-307. https://doi.org/10.1177/1049909118805413
Souza, N. P. G. et al (2021). Validação de tecnologia educacional para prevenção e controle de infecções transmitidas por contato. Rev Rene, Fortaleza, v. 22, e59984, jan. 2021. Retrieved from: www.periodicos.ufc.br/rene.
Taubert, M., Norris, J., Edwards, S., Snow, V., & Finlay, I. G. (2018). Talk CPR-a technology project to improve communication in do not attempt cardiopulmonary resuscitation decisions in palliative illness. BMC palliative care, 17(1), 1-12. 10.1186 / s12904-018-0370-9.
Teixeira, E. (2010). Tecnología en enfermería: producciones y tendencias para la educación en salud junto a la comunidade. Rev. Eletr. Enf. [Internet], 12(4):600. 10.5216/ree.v12i4.12470
Thomas, K., & Moore, G. (2015). The development and evaluation of a multimedia resource for family carers of patients receiving palliative care: a consumer-led project. Palliative & supportive care, 13(3), 417. 10.1017/S1478951513001090
Ursi, E. S., & Gavão, C. M. (2006). Prevenção de lesões de pele no perioperatório: revisão integrativa da literatura. Revista Latino-Americana de Enfermagem, 14(1), 124-131.
Vale, J. M. M. D., Marques Neto, A. C., Santana, M. E. D., & Mendes, C. P. (2019). Validação de tecnologia para autocuidado do familiar cuidador de pacientes oncológicos paliativos domiciliares. Rev Rene, 20, 1-8. 10.15253/2175-6783.20192040957.
Varela, A. I. S., da Rosa, L. M., Radünz, V., Salum, N. C., & de Souza, A. I. J. (2017). Cartilha educativa para pacientes em cuidados paliativos e seus familiares: estratégias de construção. Revista de Enfermagem UFPE on line, 11(7), 2955-2962. https://doi.org/10.5205/1981-8963-v11i7a23476p2955-2962-2017
World Health Organization (WHO) (2021). Palliative care. http://www.who.int/cancer/palliative/en/.
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