Role of home caregivers in care for persons with Parkinson's disease: an integrative review

Authors

DOI:

https://doi.org/10.33448/rsd-v10i10.18835

Keywords:

Parkinson's disease; Caregivers; Home care.

Abstract

Search the literature for activities performed by family caregivers to people with Parkinson's disease, pointing out their main difficulties and activities implemented at home to improve the patient's quality of life. This is an integrative literature review, with a descriptive and qualitative aspect. The search for data took place in the following databases: Latin American and Caribbean Literature on Health Sciences (LILACS); Scientific Electronic Library Online (SciELO) and Nursing Database (BDENF). The research took place from June to July 2021, and the descriptors “Parkinson's Disease; Caregivers; Home care”. Established in the list of Health Sciences Descriptors (DECs), and after applying the eligibility criteria, eight studies remained to be used in the study. The main difficulty in home care for patients with PD is the lack of information about the pathology and, consequently, the lack of preparation of caregivers, who are mostly composed of female spouses. It is concluded that it is necessary to have an effective health promotion in the home context, to offer qualification and preparation to these informal caregivers.

References

Acta Medica Portuguesa. SUP2011, 24, 827-834.

Acta Medica Portuguesa. Out2019, 32, 661-670.

Alvarez, A. M., Valcarenghi, R. V., Nunes, S. F. L., Siewert, J. S., & Baptista, R. (2017). O impacto da aposentadoria nas pessoas com doença de Parkinson em idade ativa. Revista Eletrônica De Enfermagem, 19. https://doi.org/10.5216/ree.v19.39607

Alvarez, A., Gonçalves, L., Schier, J., Hammerschmidt, K., Souza, B., & Valcarenghi, R. (2016). Grupo de apoio às pessoas com Doença de Parkinson e seus familiares. Extensio: Revista Eletrônica De Extensão, 13(22), 92. 10.5007/1807-0221.2016v13n22p92

Dia Mundial de Conscientização da Doença de Parkinson | Biblioteca Virtual em Saúde MS. (n.d.). Biblioteca Virtual em Saúde MS. https://bvsms.saude.gov.br/dia-mundial-de-conscientizacao-da-doenca-de-parkinson/

Dia Mundial de Combate ao Mal de Parkinson: como perceber sinais antecipadamente - Hospital Santa Mônica. (2020). Hospital Santa Mônica. https://hospitalsantamonica.com.br/prioridade-dia-mundial-de-combate-ao-mal-de-parkinson/

Ercole, F., Melo, L., & Alcoforado, C. (2014). Integrative review versus systematic review. Reme: Revista Mineira De Enfermagem, 18(1). 10.5935/1415-2762.20140001.

Filippin, N., Martins, J., Dela Libera, L., Halberstadt, B., & Severo, A. (2014). Qualidade de vida de sujeitos com doença de Parkinson e seus cuidadores. Fisioterapia Em Movimento, 27(1), 57-66. 10.1590/0103-5150.027.001.ao06

Gondim, I., Lins, C., Asano, N., Curi, D., Lins, O., & Coriolano, M. (2018). Conhecimentos, Atitudes E Práticas De Pessoas Com Doença De Parkinson Sobre Um Programa Terapeûtico Domicilar Com Orientação Em Grupo. Estudos Interdisciplinares Sobre O Envelhecimento, 23(2). 10.22456/2316-2171.76898

Gonçalves, L. H. T., Alvarez, A. M., & Arruda, M. C. (2007). Pacientes portadores da doença de Parkinson: significado de suas vivências. Acta Paulista de Enfermagem, 20(1), 62–68. https://doi.org/10.1590/s0103-21002007000100011

Maia, C., Galvão, T., Oliveira, K., & Miranda, F. (2021). Assistência à pessoa com Parkinson no âmbito da estratégia de saúde da família Assistance to the person with Parkinson carrier in the context of family health strategy.

Nunes, S., Alvarez, A., Costa, M., & Valcarenghi, R. (2019). Determining Factors In The Situational Transition Of Family Members Who Care Of Elderly People With Parkinson's Disease. Texto & Contexto - Enfermagem, 28. 10.1590/1980-265x-tce-2017-0438

Nunes, S., Alvarez, A., Valcarenghi, R., Hammerschmidt, K., & Baptista, R. (2019). Adaptação dos Familiares Cuidadores de Idosos com Doença de Parkinson: Processo de Transição. Psicologia: Teoria E Pesquisa, 35(spe). 10.1590/0102.3772e35nspe4

O que é a doença de Parkinson? (artigo) | Khan Academy. (n.d.). Khan Academy. https://pt.khanacademy.org/science/health-and-medicine/nervous-system-diseases/parkinsons-disease/a/what-is-parkinsons-disease

Padovani, C., Lopes, M., Higahashi, I., Pelloso, S., Paiano, M., & Christophoro, R. (2018). Being caregiver of people with Parkinson's Disease: experienced situations. Revista Brasileira De Enfermagem, 71(suppl 6), 2628-2634. 10.1590/0034-7167-2017-0008. https://www.einstein.br/doencas-sintomas/parkinson

Vitória, R. (2021). Dia Mundial do Parkinson: segunda doença neurodegenerativa mais prevalente no mundo. https://www.folhavitoria.com.br/saude/noticia/04/2019/dia-mundial-do-parkinson-segunda-doenca-neurodegenerativa-mais-prevalente-no-mundo

Horning, M. A., Shin, J. Y., DiFusco, L. A., Norton, M., & Habermann, B. (2019). Symptom progression in advanced Parkinson's disease: Dyadic perspectives. Applied nursing research, ANR, 50, 151193. https://doi.org/10.1016/j.apnr.2019.151193

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Published

12/08/2021

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SANTOS, A. B. A. de S.; SILVA , L. A. da .; PARDELHAS , M. E. B. .; SILVA , M. A.; ANJOS , S. P. dos .; REIS , E. R. dos S. .; COSTA , L. de A. .; ANDRADE , K. S. .; OLIVEIRA JUNIOR , E. J. de .; LIMA, M. W. H. .; SANTOS , I. R. S. dos .; SOUSA, K. O. de .; SANTOS , J. S. M. dos .; SANTOS , C. B. dos .; MOREIRA, L. da F. A. .; SOARES , M. S. .; LEITE , N. A. .; TEIXEIRA, L. B. . .; SILVA , E. P. da .; PAIXÃO , C. M. .; FERREIRA , I. M. S. .; SANTOS , B. M. R. dos .; OLIVEIRA , M. C. do N. .; SILVA , A. J. A. .; MARINHO , R. R. de S. .; ZANDIM , J. C. L. .; LOUZADA , M. A. da S. B.; SILVA , T. A. da; FIGUEIRA , E. C. dos S. .; COSTA, L. E. S.; NASCIMENTO, M. G. G. . Role of home caregivers in care for persons with Parkinson’s disease: an integrative review. Research, Society and Development, [S. l.], v. 10, n. 10, p. e311101018835, 2021. DOI: 10.33448/rsd-v10i10.18835. Disponível em: https://rsdjournal.org/index.php/rsd/article/view/18835. Acesso em: 22 nov. 2024.

Issue

Vol. 10 No. 10

Section

Review Article

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Copyright (c) 2021 Allan Bruno Alves de Sousa Santos; Luíza Alves da Silva ; Maria Eduarda Barros Pardelhas ; Mikaelle Alves Silva ; Sara Paulino dos Anjos ; Emanuel Roger dos Santos Reis ; Ludmila de Araujo Costa ; Karine Souza Andrade ; Edilson Josué de Oliveira Junior ; Mariel Wágner Holanda Lima; Isabelly Raiane Silva dos Santos ; Kaline Oliveira de Sousa; Julia Suelen Matias dos Santos ; Carlianne Brito dos Santos ; Letícia da Fonseca Anacleto Moreira; Mateus Silva Soares ; Nair Arrais Leite ; Leandro Barbosa Teixeira; Elias Paulo da Silva ; Caroline Milanez Paixão ; Islaila Maria Silva Ferreira ; Bárbara Maria Rodrigues dos Santos ; Maria Clara do Nascimento Oliveira ; Amanda Joyce Alves Silva ; Rebeca Rayane de Sousa Marinho ; Jéssica Cristina Lins Zandim ; Matheus Augusto da Silva Belidio Louzada ; Thays Almeida da Silva ; Elaine Cristina dos Santos Figueira ; Lina Eduarda Silva Costa; Máyra Geovanna Gonzaga Nascimento

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