Instrumentos de medición de la calidad de vida aplicados a personas trasplantadas de riñón
DOI:
https://doi.org/10.33448/rsd-v10i13.21548Palabras clave:
Trasplante de riñón; Examen; Calidad de vida.Resumen
El objetivo de esta investigación fue identificar en la literatura los instrumentos aplicados para medir la calidad de vida (CV) en pacientes con trasplante renal. Se trata de una revisión de la literatura realizada en Pubmed, bases de datos Science direct y en el portal Virtual Health Library (VHL), que identificó publicaciones que utilizaron las medidas de resultado informadas por el paciente (MRRP) en el trasplante renal. El corpus de análisis de esta investigación se obtuvo mediante 23 artículos, que presentaron diferentes instrumentos para evaluar la CV en receptores de trasplante renal. Se pudo observar una baja producción bibliográfica sobre este tema, con un promedio de 1,5 publicaciones por año, considerando el intervalo muestral (1996-2021). El SF-36 fue el cuestionario predominante entre los estudios analizados, siendo los demás de abordaje genérico con características divergentes entre los objetivos del evaluador y los de la investigación. Finalmente, este estudio señaló la necesidad de profundizar en la investigación para evaluar la aplicación de instrumentos más específicos para esta población, de manera que se capten las necesidades reales de los receptores de trasplante renal, contribuyendo a la atención centrada en el paciente.
Citas
Adeeb, H., Ullah, I., Zeb, M., & Haq, M. (2021). Clinical factors and comorbidities affecting health-related quality of life in postrenal transplant patients. Porto Biomedical Journal, 6(3), e131. https://doi.org/10.1097/j.pbj.0000000000000131
Agochukwu, N. Q., Wittmann, D., Boileau, N. R., Dunn, R. L., Montie, J., Kim, T., Miller, D. C., Peabody, J., & Carlozzi, N. E. (2020). Reply to K.P. Weinfurt et al. Journal of Clinical Oncology, 38(6), 654–655. https://doi.org/10.1200/JCO.19.02642
Alvares, J., Cesar, C. C., Acurcio, F. de A., Andrade, E. I. G., & Cherchiglia, M. L. (2012). Quality of life of patients in renal replacement therapy in Brazil: Comparison of treatment modalities. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 21(6), 983–991. https://doi.org/10.1007/s11136-011-0013-6
Baker, R. J., Mark, P. B., Patel, R. K., Stevens, K. K., & Palmer, N. (2017). Renal association clinical practice guideline in post-operative care in the kidney transplant recipient. BMC Nephrology, 18(1), 174. https://doi.org/10.1186/s12882-017-0553-2
Barotfi, S., Molnar, M. Zs., Almasi, C., Kovacs, A. Zs., Remport, A., Szeifert, L., Szentkiralyi, A., Vamos, E., Zoller, R., Eremenco, S., Novak, M., & Mucsi, I. (2006). Validation of the Kidney Disease Quality of Life-Short Form questionnaire in kidney transplant patients. Journal of Psychosomatic Research, 60(5), 495–504. https://doi.org/10.1016/j.jpsychores.2005.09.009
Cetingok, M., Winsett, R. P., & Hathaway, D. K. (2004). A comparative study of quality of life among the age groups of kidney transplant recipients. Progress in Transplantation (Aliso Viejo, Calif.), 14(1), 33–38. https://doi.org/10.7182/prtr.14.1.g5612w70x8331k61
Czyżewski, Ł., Frelik, P., Wyzgał, J., & Szarpak, Ł. (2018). Evaluation of Quality of Life and Severity of Depression, Anxiety, and Stress in Patients After Kidney Transplantation. Transplantation Proceedings, 50(6), 1733–1737. https://doi.org/10.1016/j.transproceed.2018.04.026
Dobbels, F., Wong, S., Min, Y., Sam, J., & Kalsekar, A. (2014). Beneficial effect of belatacept on health-related quality of life and perceived side effects: Results from the BENEFIT and BENEFIT-EXT trials. Transplantation, 98(9), 960–968. https://doi.org/10.1097/TP.0000000000000159
Flechner, S. M. (2016). Optimizing immunosuppression: Who can do more with less? Transplant International: Official Journal of the European Society for Organ Transplantation, 29(1), 20–22. https://doi.org/10.1111/tri.12676
Flythe, J. E., Powell, J. D., Poulton, C. J., Westreich, K. D., Handler, L., Reeve, B. B., & Carey, T. S. (2015). Patient-Reported Outcome Instruments for Physical Symptoms Among Patients Receiving Maintenance Dialysis: A Systematic Review. American Journal of Kidney Diseases, 66(6), 1033–1046. https://doi.org/10.1053/j.ajkd.2015.05.020
Franke, G. H., Yücetin, L., Yaman, H., Reimer, J., & Demirbas, A. (2006). Disease-Specific Quality of Life in Turkish Patients After Successful Kidney Transplantation. Transplantation Proceedings, 38(2), 457–459. https://doi.org/10.1016/j.transproceed.2005.12.110
Gibbons, A., Bayfield, J., Cinnirella, M., Draper, H., Johnson, R. J., Oniscu, G. C., Ravanan, R., Tomson, C., Roderick, P., Metcalfe, W., Forsythe, J. L. R., Dudley, C., Watson, C. J. E., Bradley, J. A., & Bradley, C. (2021). Changes in quality of life (QoL) and other patient-reported outcome measures (PROMs) in living-donor and deceased-donor kidney transplant recipients and those awaiting transplantation in the UK ATTOM programme: A longitudinal cohort questionnaire survey with additional qualitative interviews. BMJ Open, 11(4), e047263. https://doi.org/10.1136/bmjopen-2020-047263
Graziadei, I. (2014). [Intensive care treatment before and after liver transplantation]. Medizinische Klinik, Intensivmedizin Und Notfallmedizin, 109(6), 411–417. https://doi.org/10.1007/s00063-014-0364-1
Johnson, C. D., Wicks, M. N., Milstead, J., Hartwig, M., & Hathaway, D. K. (1998). Racial and gender differences in quality of life following kidney transplantation. Image--the Journal of Nursing Scholarship, 30(2), 125–130. https://doi.org/10.1111/j.1547-5069.1998.tb01266.x
Ju, A., Josephson, M. A., Butt, Z., Jowsey-Gregoire, S., Tan, J., Taylor, Q., Fowler, K., Dobbels, F., Caskey, F., Jha, V., Locke, J., Knoll, G., Ahn, C., Hanson, C. S., Sautenet, B., Manera, K., Craig, J. C., Howell, M., Rutherford, C., … Patients and family members. (2019). Establishing a Core Outcome Measure for Life Participation: A Standardized Outcomes in Nephrology-kidney Transplantation Consensus Workshop Report. Transplantation, 103(6), 1199–1205. https://doi.org/10.1097/TP.0000000000002476
Kamran, F., & Fife-Schaw, C. (2012). Psychosocial versus clinical factors influencing QoL among renal transplant recipients. International Journal of Research Studies in Psychology, 2. https://doi.org/10.5861/ijrsp.2012.159
Kizilisik, A. T., Feurer, I. D., VanBuren, D. H., Wise, P., Van Buren, D., Hopkins, J., Ray, J., Nylander, W., Shaffer, D., Helderman, J. H., Langone, A. J., Speroff, T., & Pinson, C. W. (2003). Effects of diabetes and cadaveric organs on functional performance and health-related quality of life after kidney transplantation. The American Journal of Surgery, 186(5), 535–539. https://doi.org/10.1016/j.amjsurg.2003.07.013
Kong, I. L. L., & Molassiotis, A. (1999). Quality of life, coping and concerns in Chinese patients after renal transplantation. International Journal of Nursing Studies, 36(4), 313–322. https://doi.org/10.1016/S0020-7489(99)00025-5
Kurtin, P. S., Davies, A. R., Meyer, K. B., DeGiacomo, J. M., & Kantz, M. E. (1992). Patient-Based Health Status Measures in Outpatient Dialysis: Early Experiences in Developing an Outcomes Assessment Program. Medical Care, 30(5), MS136–MS149.
Laupacis, A., Keown, P., Pus, N., Krueger, H., Ferguson, B., Wong, C., & Muirhead, N. (1996). A study of the quality of life and cost-utility of renal transplantation. Kidney International, 50(1), 235–242. https://doi.org/10.1038/ki.1996.307
Liberati, A., Altman, D. G., Tetzlaff, J., Mulrow, C., Gøtzsche, P. C., Ioannidis, J. P. A., Clarke, M., Devereaux, P. J., Kleijnen, J., & Moher, D. (2009). The PRISMA statement for reporting systematic reviews and meta-analyses of studies that evaluate healthcare interventions: Explanation and elaboration. BMJ (Clinical Research Ed.), 339, b2700. https://doi.org/10.1136/bmj.b2700
Lim, M. A., Kohli, J., & Bloom, R. D. (2017). Immunosuppression for kidney transplantation: Where are we now and where are we going? Transplantation Reviews (Orlando, Fla.), 31(1), 10–17. https://doi.org/10.1016/j.trre.2016.10.006
Mitsui, Y., Araki, M., Maruyama, Y., Yoshinaga, K., Sadahira, T., Wada, K., Tanabe, K., Kitagawa, M., Kobayashi, Y., Watanabe, M., Watanabe, T., & Nasu, Y. (2020). Quality of Life and Mental Satisfaction Improve Slowly in Preemptive Kidney Transplantation Compared With Nonpreemptive Kidney Transplantation. Transplantation Proceedings, 52(3), 740–747. https://doi.org/10.1016/j.transproceed.2020.01.042
Monica, 1776 Main Street Santa, & California 90401-3208. ([s.d.]). 36-Item Short Form Survey Instrument (SF-36). Recuperado 2 de setembro de 2021, de https://www.rand.org/health-care/surveys_tools/mos/36-item-short-form/survey-instrument.html
Muehrer, R. J., & Becker, B. N. (2005). Life after transplantation: New transitions in quality of life and psychological distress. Seminars in Dialysis, 18(2), 124–131. https://doi.org/10.1111/j.1525-139X.2005.18214.x
Ponton, P., Rupolo, G. P., Marchini, F., Feltrin, A., Perin, N., Mazzoldi, M. A., Giacon, B., Baldan, N., & Rigotti, P. (2001). Quality-of-life change after kidney transplantation. Transplantation Proceedings, 33(1), 1887–1889. https://doi.org/10.1016/S0041-1345(00)02737-8
See, S. B., Aubert, O., Loupy, A., Veras, Y., Lebreton, X., Gao, B., Legendre, C., Anglicheau, D., & Zorn, E. (2018). Post-Transplant Natural Antibodies Associate with Kidney Allograft Injury and Reduced Long-Term Survival. Journal of the American Society of Nephrology: JASN, 29(6), 1761–1770. https://doi.org/10.1681/ASN.2017111157
Sesso, R., Rodrigues-Neto, J. F., & Ferraz, M. B. (2003). Impact of socioeconomic status on the quality of life of ESRD patients. American Journal of Kidney Diseases, 41(1), 186–195. https://doi.org/10.1053/ajkd.2003.50003
Shah, V. S., Ananth, A., Sohal, G. K., Bertges-Yost, W., Eshelman, A., Parasuraman, R. K., & Venkat, K. K. (2006). Quality of Life and Psychosocial Factors in Renal Transplant Recipients. Transplantation Proceedings, 38(5), 1283–1285. https://doi.org/10.1016/j.transproceed.2006.03.027
Sharp, L. A. (1995). Organ transplantation as a transformative experience: Anthropological insights into the restructuring of the self. Medical Anthropology Quarterly, 9(3), 357–389. https://doi.org/10.1525/maq.1995.9.3.02a00050
Soares, C. B., Hoga, L. A. K., Peduzzi, M., Sangaleti, C., Yonekura, T., & Silva, D. R. A. D. (2014). Integrative Review: Concepts and Methods Used In Nursing. Revista Da Escola de Enfermagem Da USP, 48(2), 335–345. https://doi.org/10.1590/S0080-6234201400002000020
Tang, E., Ekundayo, O., Peipert, J. D., Edwards, N., Bansal, A., Richardson, C., Bartlett, S. J., Howell, D., Li, M., Cella, D., Novak, M., & Mucsi, I. (2019). Validation of the Patient-Reported Outcomes Measurement Information System (PROMIS)-57 and -29 item short forms among kidney transplant recipients. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 28(3), 815–827. https://doi.org/10.1007/s11136-018-2058-2
The World Health Organization Quality of Life assessment (WHOQOL): Position paper from the World Health Organization. (1995). Social Science & Medicine (1982), 41(10), 1403–1409. https://doi.org/10.1016/0277-9536(95)00112-k
Tsarpali, V., Midtvedt, K., Lønning, K., Bernklev, T., Lippe, N. von der, Reisæter, A. V., Brunborg, C., & Heldal, K. (2021). Health-Related Quality of Life in Older Kidney Transplant Recipients: A National Cohort Study of Short- and Longer-Term Outcomes. Kidney Medicine. https://doi.org/10.1016/j.xkme.2021.05.007
Urstad, K. H., Øyen, O., Andersen, M. H., Moum, T., & Wahl, A. K. (2012). The effect of an educational intervention for renal recipients: A randomized controlled trial. Clinical Transplantation, 26(3), E246-253. https://doi.org/10.1111/j.1399-0012.2012.01666.x
Verberne, W. R., Das-Gupta, Z., Allegretti, A. S., Bart, H. A. J., van Biesen, W., García-García, G., Gibbons, E., Parra, E., Hemmelder, M. H., Jager, K. J., Ketteler, M., Roberts, C., Al Rohani, M., Salt, M. J., Stopper, A., Terkivatan, T., Tuttle, K. R., Yang, C.-W., Wheeler, D. C., & Bos, W. J. W. (2019). Development of an International Standard Set of Value-Based Outcome Measures for Patients With Chronic Kidney Disease: A Report of the International Consortium for Health Outcomes Measurement (ICHOM) CKD Working Group. American Journal of Kidney Diseases, 73(3), 372–384. https://doi.org/10.1053/j.ajkd.2018.10.007
Villeneuve, C., Rousseau, A., Rerolle, J.-P., Couzi, L., Kamar, N., Essig, M., Etienne, I., Westeel, P.-F., Büchler, M., Esposito, L., Thierry, A., Marquet, P., & Monchaud, C. (2020). Adherence profiles in kidney transplant patients: Causes and consequences. Patient Education and Counseling, 103(1), 189–198. https://doi.org/10.1016/j.pec.2019.08.002
Von der Lippe, N., Waldum, B., Brekke, F. B., Amro, A. A. G., Reisæter, A. V., & Os, I. (2014). From dialysis to transplantation: A 5-year longitudinal study on self-reported quality of life. BMC Nephrology, 15, 191. https://doi.org/10.1186/1471-2369-15-191
Ware, J. E., Richardson, M. M., Meyer, K. B., & Gandek, B. (2019). Improving CKD-Specific Patient-Reported Measures of Health-Related Quality of Life. Journal of the American Society of Nephrology: JASN, 30(4), 664–677. https://doi.org/10.1681/ASN.2018080814
Wasson, J., Keller, A., Rubenstein, L., Hays, R., Nelson, E., Johnson, D., & Project, T. D. P. C. C. (1992). Benefits and Obstacles of Health Status Assessment in Ambulatory Settings: The Clinician’s Point of View. Medical Care, 30(5), MS42–MS49.
Wolfe, R. A., Ashby, V. B., Milford, E. L., Ojo, A. O., Ettenger, R. E., Agodoa, L. Y., Held, P. J., & Port, F. K. (1999). Comparison of mortality in all patients on dialysis, patients on dialysis awaiting transplantation, and recipients of a first cadaveric transplant. The New England Journal of Medicine, 341(23), 1725–1730. https://doi.org/10.1056/NEJM199912023412303
Wu, A. W., & Predmore, Z. S. (2019a). Patient-Reported Outcomes: Toward Better Measurement of Patient-Centered Care in CKD. Journal of the American Society of Nephrology, 30(4), 523–525. https://doi.org/10.1681/ASN.2019020169
Wu, A. W., & Predmore, Z. S. (2019b). Patient-Reported Outcomes: Toward Better Measurement of Patient-Centered Care in CKD. Journal of the American Society of Nephrology, 30(4), 523–525. https://doi.org/10.1681/ASN.2019020169
Wu, A. W., Snyder, C., Clancy, C. M., & Steinwachs, D. M. (2010). Adding The Patient Perspective To Comparative Effectiveness Research. Health Affairs, 29(10), 1863–1871. https://doi.org/10.1377/hlthaff.2010.0660
XXVI No 4—Anual. ([s.d.]). ABTO. Recuperado 2 de setembro de 2021, de https://site.abto.org.br/publicacao/xxvi-no-4-anual/
Yapa, H. E., Purtell, L., Chambers, S., & Bonner, A. (2020). The Relationship Between Chronic Kidney Disease, Symptoms and Health-Related Quality of Life: A Systematic Review. Journal of Renal Care, 46(2), 74–84. https://doi.org/10.1111/jorc.12303
Yildirim, A. (2006). The Importance of Patient Satisfaction and Health-Related Quality of Life After Renal Transplantation. Transplantation Proceedings, 38(9), 2831–2834. https://doi.org/10.1016/j.transproceed.2006.08.162
Zaydfudim, V., Feurer, I. D., Moore, D. R., Moore, D. E., Pinson, C. W., & Shaffer, D. (2010). Pre-transplant Overweight and Obesity Do Not Affect Physical Quality of Life after Kidney Transplantation. Journal of the American College of Surgeons, 210(3), 336–344. https://doi.org/10.1016/j.jamcollsurg.2009.11.009
Zhao, L., Yan, J., Yang, G.-L., & Liu, Y. (2017). A Study on Adherence to Follow-up, Quality of Life, and Associated Factors Among Renal Transplant Recipients in China. Transplantation Proceedings, 49(6), 1285–1290. https://doi.org/10.1016/j.transproceed.2017.03.086
Descargas
Publicado
Cómo citar
Número
Sección
Licencia
Derechos de autor 2021 Mariane Teixeira Dantas Farias; Edson Arakaki; Danielle Guedes Souza; Igor Ferreira Borba de Almeida; Bartira de Aguiar Roza; Elena Bohomol; Regimar Carla Machado
![Creative Commons License](http://i.creativecommons.org/l/by/4.0/88x31.png)
Esta obra está bajo una licencia internacional Creative Commons Atribución 4.0.
Los autores que publican en esta revista concuerdan con los siguientes términos:
1) Los autores mantienen los derechos de autor y conceden a la revista el derecho de primera publicación, con el trabajo simultáneamente licenciado bajo la Licencia Creative Commons Attribution que permite el compartir el trabajo con reconocimiento de la autoría y publicación inicial en esta revista.
2) Los autores tienen autorización para asumir contratos adicionales por separado, para distribución no exclusiva de la versión del trabajo publicada en esta revista (por ejemplo, publicar en repositorio institucional o como capítulo de libro), con reconocimiento de autoría y publicación inicial en esta revista.
3) Los autores tienen permiso y son estimulados a publicar y distribuir su trabajo en línea (por ejemplo, en repositorios institucionales o en su página personal) a cualquier punto antes o durante el proceso editorial, ya que esto puede generar cambios productivos, así como aumentar el impacto y la cita del trabajo publicado.