Health education in the management of children and adolescents affected with Diabetes Mellitus Type 1
DOI:
https://doi.org/10.33448/rsd-v11i8.30549Keywords:
Health Education; Diabetes Mellitus, Type 1; Home Nursing; Child Health; Adolescents health.Abstract
Purpose: To identify the knowledge acquired by caregivers of children/adolescents with type 1 Diabetes Mellitus (DM1) in health education consultations and its implication in home care, as well as to evaluate the performance of the multidisciplinary team in the transmission of this knowledge. Methodology: Descriptive study with a qualitative approach carried out remotely with the companions of children/adolescents with DM1 who are followed up at an outpatient clinic specializing in endocrinology at a University Hospital in the Federal District. For data collection, a participant characterization form was used and an individual non-directive interview was conducted. Data collection was carried out through telephone contact and video conference. Results: Five caregivers participated in the study, aged between 36 and 47 years. The sample was delimited by data saturation. In this study, it was revealed that knowledge related to food, physical activity and rights to inputs proved to be adequate, although the sample has small gaps in knowledge about medications and in the use of new technologies. Health education by the multidisciplinary team proved to be a fundamental factor for good insulin management, regardless of the previous technical skills of caregivers and patients, although it is not the only source of information, and the internet is also widely used. Conclusion: Considering the knowledge, difficulties and needs of the individual related to the disease is essential for the effective performance of professionals in the health education process, aiming to equip the caregiver for effective adherence to the treatment of children with DM1.
References
Atlas, D. (2015). International diabetes federation. IDF Diabetes Atlas, 7th edn. Brussels, Belgium: International Diabetes Federation, 33.
Brancaglioni, B. de C. A., Rodrigues, G. C., Damião, E. B. C., Queiroz, M. S., & Nery, M. (2016). Crianças e adolescentes que convivem com diabetes e doença celíaca. Revista Gaúcha de Enfermagem, 37(1). https://doi.org/10.1590/1983-1447.2016.01.53787
Cabral, I. E., & Moraes, J. R. M. M. de. (2015). Familiares cuidadores articulando rede social de criança com necessidades especiais de saúde. Revista Brasileira de Enfermagem, 68(6), 1078–1085. https://doi.org/10.1590/0034-7167.2015680612i
Cheraghi, F., & Shamsaei, F. (2016). The Effect of Family-centered Care on Management of Blood Glucose Levels in Adolescents with Diabetes. Endocrine Abstracts. https://doi.org/10.1530/endoabs.43.OC43
Chizzotti, A. (2018). Pesquisa em ciências humanas e sociais. Cortez editora.
Church, T. J., & Haines, S. T. (2016). Treatment Approach to Patients With Severe Insulin Resistance. Clinical Diabetes, 34(2), 97–104. https://doi.org/10.2337/diaclin.34.2.97
Collet, N., Batista, A. F. de M. B., Nóbrega, V. M. da, Souza, M. H. do N., & Fernandes, L. T. B. (2018). Self-care support for the management of type 1 diabetes during the transition from childhood to adolescence. Revista da Escola de Enfermagem da USP, 52(0). https://doi.org/10.1590/s1980-220x2017038503376
Correa, A., Franco, S., Demario, R. L., & dos SANTOS, E. F. (2012). DIABETES MELLITUS TIPO 1: VIVÊNCIA DOS PAIS EM RELAÇÃO À ALIMENTAÇÃO DE SEU FILHO. Brazilian Journal of Food & Nutrition/Alimentos e Nutrição, 23(4).
Cruz, D. S. M. D., Collet, N., Andrade, E. M. C. D., Nóbrega, V. M. D., & Nóbrega, M. M. L. D. (2017). Vivências de mães de crianças diabéticasa. Escola Anna Nery, 21.
da Silva, C. G., Pacheco, G. S., & Paixão, J. J. A. (2020) BENEFÍCIOS DA ATIVIDADE FÍSICA PARA PORTADORES DE DIABETES TIPO I.
Dantas, I. R. de O., Neris, R. R., Zago, M. M. F., Santos, M. A. dos, & Nascimento, L. C. (2020). Explanatory models of families of children with type 1 diabetes mellitus. Revista Brasileira de Enfermagem, 73(suppl 4), e20180975. https://doi.org/10.1590/0034-7167-2018-0975
de Campos, C. M., & Azevedo, L. F. (2022). Escola, família e o diabetes tipo 1: sentidos produzidos pelas Mães Pâncreas. Research, Society and Development, 11(2), e44411226035-e44411226035.
dos Santos Abreu, F. S., Carvalho, A. R. T. B., Lauand, T. C. G., Porto, L. B., de Freitas Souza, A., Diniz, A. L. R., & Pedrosa, H. C. (2022). Avaliação do impacto da educação em diabetes via rede social no controle glicêmico de pacientes com Diabetes mellitus tipo 1 durante a pandemia da COVID-19. Research, Society and Development, 11(2), e42211226009-e42211226009.
Forti, A. C., Pires, A. C., Pittito, B. de. A., Gerchman, F., de Oliviera, J. E. P., Zajdenverg, L., Krakauer, M., Foss-Freitas, M. C., Pinto, M. S., Raduan, R. A., Zagury, R., Vivolo, S. R. G. F., Vencio, S., & Lottenberg, S. A. (2019). Sociedade Brasileira de Diabetes. Diretrizes da Sociedade Brasileira de Diabetes, 2019.
Freitas, S. M., Silva, L. R. da, Silva, M. M. M. da, Santos, S. O. P. dos, Sousa, F. da S., Feitosa, M. A., & Cavalcante, R. M. S. (2021). Diabetes mellitus tipo 1 infantil e as dificuldades no manejo da doença no seio familiar: Uma revisão integrativa. Research, Society and Development, 10(7), e51010716832. https://doi.org/10.33448/rsd-v10i7.16832
Friedman, M. M., Bowden, V. R., & Jones, E. G. (1998). Family nursing: Focus, evolution, and goals. Family nursing: Research, theory and practice, 31-48.
Goulart Nobre, C. M., Rodrigues Costa, A., Minasi, A. S., Medeiros Possani, S., Soares Mota, M., & Calcagno Gomes, G. (2019). CARE FOR CHILDREN AND ADOLESCENTS WITH DIABETES MELLITUS TYPE 1. Journal of Nursing UFPE/Revista de Enfermagem UFPE, 13(1).
Guerriero, I. C. Z. (2016). Resolução nº 510 de 7 de abril de 2016 que trata das especificidades éticas das pesquisas nas ciências humanas e sociais e de outras que utilizam metodologias próprias dessas áreas. Ciência & Saúde Coletiva, 21, 2619-2629.
Hannon, T. S., Janosky, J., & Arslanian, S. A. (2006). Longitudinal Study of Physiologic Insulin Resistance and Metabolic Changes of Puberty. Pediatric Research, 60(6), 759–763. https://doi.org/10.1203/01.pdr.0000246097.73031.27
Jeschke, M. G., & Boehning, D. (2012). Endoplasmic reticulum stress and insulin resistance post-trauma: Similarities to type 2 diabetes. Journal of Cellular and Molecular Medicine, 16(3), 437–444. https://doi.org/10.1111/j.1582-4934.2011.01405.x
Jönsson, L., Hallström, I., & Lundqvist, A. (2010). RAesemarcuh alrttiic-ledisciplinary education process related to the discharging of children from hospital when the child has been diagnosed with type 1 diabetes—A qualitative study. 10.
Kenny, J., & Corkin, D. (2013). A children’s nurse’s role in the global development of a child with diabetes mellitus: Jodie Kenny and Doris Corkin discuss how nurses should work closely with children who have type 1 diabetes, and their parents, to increase understanding of the condition and improve care. Nursing Children and Young People, 25(9), 22–25. https://doi.org/10.7748/ncyp2013.11.25.9.22.e204
Kramer, H., Dugas, L., & Rosas, S. E. (2013). Race and the Insulin Resistance Syndrome. Seminars in Nephrology, 33(5), 457–467. https://doi.org/10.1016/j.semnephrol.2013.07.007
Lakatos, E. M., & Marconi, M. de A. (2003). Fundamentos de metodologia científica. Atlas.
Madrigal, M. A., López, M., Sánchez, A., Cao, M. J., Castro, M. J., & Jiménez, J. M. (2020). Type 1 Diabetes Mellitus in Pediatric Patients and Its Impact on Relationships in the Family Environment. Diabetes, Metabolic Syndrome and Obesity: Targets and Therapy, Volume 13, 4973–4980. https://doi.org/10.2147/DMSO.S281949
Marçal, D. F. da S., Alexandrino, E. G., Cortez, L. E. R., & Bennemann, R. M. (2018). EFEITOS DO EXERCÍCIO FÍSICO SOBRE DIABETES MELLITUS TIPO 1: UMA REVISÃO SISTEMÁTICA DE ENSAIOS CLÍNICOS E RANDOMIZADOS. Journal of Physical Education, 29(1). https://doi.org/10.4025/jphyseduc.v29i1.2917
Mendes, E. V. (2010). As redes de atenção à saúde. Ciência & saúde coletiva, 15, 2297-2305.
Minayo, M. C. de S. (1992). O desafio do conhecimento. HUCITEC ; ABRASCO.
Ministério da Saúde (BR), & Conselho Nacional de Saúde. (2013). Resolução nº 466, de 12 de dezembro de 2012. Diretrizes e normas regulamentadoras de pesquisas envolvendo seres humanos. Diário Oficial da União [da] República Federativa do Brasil, 150(112), 59-62.]
Monnerat, C. P., & Cursino, G. (2016). ARTIGO ORIGINAL ESTRATÉGIA DE EDUCAÇÃO EM SAÚDE COM FAMILIARES DE CRIANÇAS EM USO CONTÍNUO DE MEDICAMENTOS. 9.
Morais, M. V. F., Xavier, R. V., Diniz, A. L. X., Cortez, A. D. O. H., Cecílio, S. G., & Souza, D. A. S. (2022). Complicações do Diabetes Mellitus em crianças e adolescentes brasileiras e fatores associados. Research, Society and Development, 11(7), e12511729560-e12511729560.
Nascimento, L. de C. N., Souza, T. V. de, Oliveira, I. C. dos S., Moraes, J. R. M. M. de, Aguiar, R. C. B. de, & Silva, L. F. da. (2018). Theoretical saturation in qualitative research: An experience report in interview with schoolchildren. Revista Brasileira de Enfermagem, 71(1), 228–233. https://doi.org/10.1590/0034-7167-2016-0616
Neves, E. T., & Cabral, I. E. (2009). Cuidar de crianças com necessidades especiais de saúde: Desafios para as famílias e enfermagem pediátrica. Revista Eletrônica de Enfermagem, 11(3). https://doi.org/10.5216/ree.v11.47094
Okido, A. C. C., Almeida, A. de, Vieira, M. M., Neves, E. T., Mello, D. F. de, & Lima, R. A. G. (2017). Care demands of children with type 1 Diabetes Mellitus. Escola Anna Nery - Revista de Enfermagem, 21(2). https://doi.org/10.5935/1414-8145.20170034
Pilger, C., & Abreu, I. S. (2007). DIABETES MELLITUS NA INFÂNCIA: REPERCUSSÕES NO COTIDIANO DA CRIANÇA E DE SUA FAMÍLIA. Cogitare Enfermagem, 12(4). https://doi.org/10.5380/ce.v12i4.10076
Pinheiro, A., Tácito, L. H. B., & Pires, A. C. (2011). Extrema resistência à insulina subcutânea e intramuscular em diabetes melito tipo 1. Arquivos Brasileiros de Endocrinologia & Metabologia, 55(3), 233–237. https://doi.org/10.1590/S0004-27302011000300010
Queiroz, M. V. O., Brito, L. M. M. C., Pennafort, V. P. dos S., & Bezerra, F. S. de M. (2016). Sensitizing children with diabetes to self-care: Contributions to educational practice. Escola Anna Nery - Revista de Enfermagem, 20(2). https://doi.org/10.5935/1414-8145.20160046
Rostami, S., Parsa-Yekta, Z., Najafi Ghezeljeh, T., & Vanaki, Z. (2014). Supporting adolescents with type 1 diabetes mellitus: A qualitative study: Supporting diabetic adolescents. Nursing & Health Sciences, 16(1), 84–90. https://doi.org/10.1111/nhs.12070
Silva, A. N. S., Apolonio, M. S., de Alcantara, C. M., Veraci, M., & Queiroz, O. (2016). SOCIOCULTURAL CHARACTERISTICS OF ADOLESCENTS WITH TYPE 1 DIABETES MELLITUS. 7.
Simões, A. L. de A., Stacciarin, T. S. G., Poggetto, M. T. D., Maruxo, H. B., Soares, H. M., & Simões, A. C. de A. (2010). Conhecimento dos professores sobre o manejo da criança com diabetes mellitus. Texto & Contexto - Enfermagem, 19(4), 651–657. https://doi.org/10.1590/S0104-07072010000400007
Souza, M. M. C., & Alves, T. C. H. S. (2022). Caracterização da vivência familiar de crianças e adolescentes portadores de Diabetes mellitus tipo 1: uma revisão narrativa. Research, Society and Development, 11(2), e6011225313-e6011225313.
Souza, R. R., Marquete, V. F., Vieira, V. C. de L., Fischer, M. J. B., Spigolon, D. N., & Marcon, S. S. (2020). Cuidado domiciliar à criança e ao adolescente com diabetes mellitus tipo 1 na perspectiva do cuidador [Home care for child and adolescent home care with type 1 diabetes mellitus from the care giver’s perspective] [Atención domiciliaria para niños y adolescentes con diabetes mellitus tipo 1 desde la perspectiva del cuidador]. Revista Enfermagem UERJ, 28, e46013. https://doi.org/10.12957/reuerj.2020.46013
Spencer, J. E., Cooper, H. C., & Milton, B. (2013). The lived experiences of young people (13-16 years) with Type 1 diabetes mellitus and their parents—A qualitative phenomenological study. Diabetic Medicine, 30(1), e17–e24. https://doi.org/10.1111/dme.12021
Terjung, R. (Org.). (2011). Comprehensive Physiology (1o ed). Wiley. https://doi.org/10.1002/cphy
Wolkers, P. C. B., Pina, J. C., Wernet, M., Furtado, M. C. de C., & Mello, D. F. de. (2019). CHILDREN WITH DIABETES MELLITUS TYPE 1: VULNERABILITY, CARE AND ACCESS TO HEALTH. Texto & Contexto - Enfermagem, 28, e20160566. https://doi.org/10.1590/1980-265x-tce-2016-0566
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