Intervenções para apoiar pais de crianças pré-escolares com Transtornos do Espectro Autista: uma revisão sistemática

Autores

DOI:

https://doi.org/10.33448/rsd-v10i14.21932

Palavras-chave:

Transtornos do Espectro Autista; Pais; Crianças pré-escolares; Intervenções; Aprimoramento do bem-estar; Apoio; Gerenciamento do estresse.

Resumo

Pais de crianças com diagnóstico recente de TEA enfrentam angústia elevada e problemas de saúde mental, como estresse, depressão e ansiedade. Ultimamente, poucas intervenções que visam diretamente o bem-estar dos pais na pré-escola têm sido implementadas em algumas pesquisas. Foi realizada uma revisão de estudos que testaram empiricamente os efeitos de diferentes tipos de intervenções visando melhorias nos pais de crianças pré-escolares com bem-estar de TEA. O objetivo desta revisão é descobrir os diferentes tipos de intervenções que têm sido utilizadas e os resultados sobre o aprimoramento do bem-estar dos pais. Pesquisando em quatro bancos de dados e seguindo uma série de estratégias de pesquisa, um total de 9 estudos atenderam aos critérios de inclusão. Os achados sugerem que, na maioria dos casos, qualquer tipo de intervenção leva a efeitos positivos na angústia e no bem-estar dos pais. No entanto, comparações e conclusões entre as diferentes abordagens são difíceis de serem feitas, pois cada um dos estudos apresentados segue metodologia diferente. Certamente, mais estudos devem focar nos pais de crianças pré-escolares com bem-estar de TEA e levar em consideração todas as limitações dos estudos que são revisados neste artigo. Apesar disso, é muito encorajador que cada vez mais pesquisadores e médicos estejam preocupados com esse tipo de intervenções para que famílias com criança com TEA sejam apoiadas adequadamente.

Referências

American Psychiatric Association (2013). Diagnostic and statistical manual of mental disorders (5th ed.). American Psychiatric Publishing.

Bannink, F. P. (2007). Solution-focused brief therapy. Journal of contemporary psychotherapy, 37(2), 87-94.

Bell, A. C., & D'Zurilla, T. J. (2009). Problem-solving therapy for depression: a meta-analysis. Clinical psychology review, 29(4), 348-353. https://doi.org/10.1016/j.cpr.2009.02.003

Bendixen, R. M., Elder, J. H., Donaldson, S., Kairalla, J. A., Valcante, G., & Ferdig, R. E. (2011). Effects of a father-based in-home intervention on perceived stress and family dynamics in parents of children with autism. American Journal of Occupational Therapy, 65(6), 679-687. https://doi.org/10.5014/ajot.2011.001271

Bitsika, V., & Sharpley, C. F. (2004). Stress, anxiety and depression among parents of children with autism spectrum disorder. Journal of Psychologists and Counsellors in Schools, 14(2), 151-161. https://doi.org/10.1017/S1037291100002466

Blacher, J., & McIntyre, L. L. (2006). Syndrome specificity and behavioral disorders in young adults with intellectual disability: Cultural differences in family impact. Journal of Intellectual Disability Research, 50(3), 184-198. https://doi.org/10.1111/j.1365-2788.2005.00768.x

Bristol, M. M., Gallagher, J. J., & Holt, K. D. (1993). Maternal depressive symptoms in autism: Response to psychoeducational intervention. Rehabilitation Psychology, 38(1), 3-10. https://doi.org/10.1037/h0080290

Cachia, R. L., Anderson, A., & Moore, D. W. (2016). Mindfulness, stress and well-being in parents of children with autism spectrum disorder: A systematic review. Journal of Child and Family Studies, 25(1), 1-14. https://doi.org/10.1007/s10826-015-0193-8

Catalano, D., Holloway, L., & Mpofu, E. (2018). Mental health interventions for parent carers of children with autistic spectrum disorder: Practice guidelines from a critical interpretive synthesis (CIS) systematic review. International journal of environmental research and public health, 15(2), 341. https://doi.org/10.3390/ijerph15020341

Centers for Disease Control (March 27, 2020) Prevalence of autism spectrum disorder among children aged 8 years - autism and developmental disabilities monitoring network, 11 Sites, United States, 2016. Morbidity and Mortality Weekly Report (MMWR). Available at: https://www.cdc.gov/mmwr/volumes/69/ss/ss6904a1.htm?s_cid=ss6904a1_w

Corcoran, J., Berry, A., & Hill, S. (2015). The lived experience of US parents of children with autism spectrum disorders: a systematic review and meta-synthesis. Journal of Intellectual Disabilities, 19(4), 356-366. https://doi.org/10.1177/1744629515577876

Corti, C., Pergolizzi, F., Vanzin, L., Cargasacchi, G., Villa, L., Pozzi, M., & Molteni, M. (2018). Acceptance and commitment therapy-oriented parent-training for parents of children with autism. Journal of Child and Family Studies, 27(9), 2887-2900. https://doi.org/10.1007/s10826-018-1123-3

Costa, A. P., Steffgen, G., & Ferring, D. (2017). Contributors to well-being and stress in parents of children with autism spectrum disorder. Research in Autism Spectrum Disorders, 37, 61-72. https://doi.org/10.1016/j.rasd.2017.01.007

Dababnah, S., & Parish, S. L. (2016). Incredible years program tailored to parents of preschoolers with autism: Pilot results. Research on Social Work Practice, 26(4), 372-385.https://doi.org/10.1177/1049731514558004

Da Paz, N. S., & Wallander, J. L. (2017). Interventions that target improvements in mental health for parents of children with autism spectrum disorders: A narrative review. Clinical psychology review, 51, 1-14. https://doi.org/10.1016/j.cpr.2016.10.006

Dennis, M. L., Neece, C. L., & Fenning, R. M. (2018). Investigating the influence of parenting stress on child behavior problems in children with developmental delay: The role of parent-child relational factors. Advances in Neurodevelopmental Disorders, 2(2), 129-141. https://doi.org/10.1007/s41252-017-0044-2

Dykens, E. M., Fisher, M. H., Taylor, J. L., Lambert, W., & Miodrag, N. (2014). Reducing distress in mothers of children with autism and other disabilities: a randomized trial. Pediatrics, 134(2), e454-e463.https://doi.org/10.1542/peds.2013-3164

Ekas, N. V., & Whitman, T. L. (2011). Adaptation to daily stress among mothers of children with an autism spectrum disorder: The role of daily positive affect. Journal of autism and developmental disorders, 41(9), 1202-1213.https://doi.org/10.1007/s10803-010-1142-4

Elsabbagh, M., Divan, G., Koh, Y. J., Kim, Y. S., Kauchali, S., Marcín, C., Montiel-Nava, C., Patel, V., Paula, C. S., Wang, C., Yasamy, M. T., & Fombonne, E. (2012). Global prevalence of autism and other pervasive developmental disorders. Autism research, 5(3), 160-179. https://doi.org/10.1002/aur.239

Estes, A., Munson, J., Dawson, G., Koehler, E., Zhou, X. H., & Abbott, R. (2009). Parenting stress and psychological functioning among mothers of preschool children with autism and developmental delay. Autism, 13(4), 375-387. https://doi.org/10.1177/1362361309105658

Estes, A., Swain, D. M., &MacDuffie, K. E. (2019). The effects of early autism intervention on parents and family adaptive functioning. Pediatric medicine, 2, 21. https://doi.org/10.21037/pm.2019.05.05

Falk, N. H., Norris, K., & Quinn, M. G. (2014). The factors predicting stress, anxiety and depression in the parents of children with autism. Journal of autism and developmental disorders, 44(12), 3185-3203. https://doi.org/10.1007/s10803-014-2189-4

Feinberg, E., Augustyn, M., Fitzgerald, E., Sandler, J., Suarez, Z. F. C., Chen, N., Cabral, H., Beardslee, W., & Silverstein, M. (2014). Improving maternal mental health after a child’s diagnosis of autism spectrum disorder: results from a randomized clinical trial. JAMA pediatrics, 168(1), 40-46. https://doi.org/10.1001/jamapediatrics.2013.3445

Frantz, R., Hansen, S. G., & Machalicek, W. (2018). Interventions to promote well-being in parents of children with autism: A systematic review. Review Journal of Autism and Developmental Disorders, 5(1), 58-77. https://doi.org/10.1007/s40489-017-0123-3

Gopalakrishnan, S., & Ganeshkumar, P. (2013). Systematic reviews and meta-analysis: understanding the best evidence in primary healthcare. Journal of family medicine and primary care, 2(1), 9. https://doi.org/10.4103/2249-4863.109934

Gould, E. R., Tarbox, J., & Coyne, L. (2018). Evaluating the effects of acceptance and commitment training on the overt behavior of parents of children with autism. Journal of Contextual Behavioral Science, 7, 81-88. https://doi.org/10.1016/j.jcbs.2017.06.003

Hemdi, A., & Daley, D. (2017). The Effectiveness of a Psychoeducation Intervention delivered via WhatsApp for mothers of children with Autism Spectrum Disorder (ASD) in the Kingdom of Saudi Arabia: A randomized controlled trial. Child: care, health and development, 43(6), 933-941. https://doi.org/10.1111/cch.12520

Higgins, D. J., Bailey, S. R., & Pearce, J. C. (2005). Factors associated with functioning style and coping strategies of families with a child with an autism spectrum disorder. Autism, 9(2), 125-137. https://doi.org/10.1177/1362361305051403

Keen, D., Couzens, D., Muspratt, S., & Rodger, S. (2010). The effects of a parent-focused intervention for children with a recent diagnosis of autism spectrum disorder on parenting stress and competence. Research in Autism Spectrum Disorders, 4(2), 229-241. https://doi.org/10.1016/j.rasd.2009.09.009

Kim, J. S. (2008). Examining the effectiveness of solution-focused brief therapy: A meta-analysis. Research on Social Work Practice, 18(2), 107-116.https://doi.org/10.1177%2F1049731507307807

Kohtala, A., Muotka, J., & Lappalainen, R. (2017). What happens after five years?: The long-term effects of a four-session Acceptance and Commitment Therapy delivered by student therapists for depressive symptoms. Journal of Contextual Behavioral Science, 6(2), 230-238. https://doi.org/10.1016/j.jcbs.2017.03.003

Kotera, Y., Pope, M., Chircop, J., Kirkman, A., Bennett-Viliardos, L. A., & Sharaan, S. (2021). Resilience intervention for families of autistic children: reviewing the literature. Journal of Concurrent Disorders. http://hdl.handle.net/10545/625790

Kuhn, J. C., & Carter, A. S. (2006). Maternal self‐efficacy and associated parenting cognitions among mothers of children with autism. American Journal of Orthopsychiatry, 76(4), 564-575.https://doi.org/10.1037/0002-9432.76.4.564

Ludlow, A., Skelly, C., & Rohleder, P. (2012). Challenges faced by parents of children diagnosed with autism spectrum disorder. Journal of health psychology, 17(5), 702-711.https://doi.org/10.1177/1359105311422955

Lunsky, Y., Hastings, R. P., Weiss, J. A., Palucka, A. M., Hutton, S., & White, K. (2017). Comparative effects of mindfulness and support and information group interventions for parents of adults with autism spectrum disorder and other developmental disabilities. Journal of Autism and Developmental Disorders, 47(6), 1769-1779.https://doi.org/10.1007/s10803-017-3099-z

McConachie, H., & Diggle, T. (2007). Parent implemented early intervention for young children with autism spectrum disorder: A systematic review. Journal of evaluation in clinical practice, 13(1), 120-129.https://doi.org/10.1111/j.1365-2753.2006.00674.x

Merriman, K., Burke, T., & O’Reilly, G. (2020). A systematic review of the effectiveness and efficacy of clinician-led psychological interventions for parents of children with ASD. Research in Autism Spectrum Disorders, 76, 101584. https://doi.org/10.1371/journal.pone.0186502

Mueller, R., & Moskowitz, L. J. (2020). Positive Family Intervention for Children with ASD: Impact on Parents’ Cognitions and Stress. Journal of Child and Family Studies, 29(12), 3536-3551. https://doi.org/10.1007/s10826-020-01830-1

Nguyen, C. T., Fairclough, D. L., & Noll, R. B. (2016). Problem-solving skills training for mothers of children recently diagnosed with autism spectrum disorder: A pilot feasibility study. Autism, 20(1), 55-64. https://doi.org/10.1177/1362361314567134

Osborne, L. A., McHugh, L., Saunders, J., & Reed, P. (2008). Parenting stress reduces the effectiveness of early teaching interventions for autistic spectrum disorders. Journal of autism and developmental disorders, 38(6), 1092-1103. https://doi.org/10.1007/s10803-007-0497-7

Page, M. J., McKenzie, J. E., Bossuyt, P. M., Boutron, I., Hoffmann, T. C., Mulrow, C. D., Shamseer, L., Tetzlaf, J. M., Akl, E. A., Brennan, S. E., Chou, R., Glanville, J., Grimshaw, J. M., Hróbjartsson, A., Lalu, M. M., Li, T., Loder, E. W., Mayo, E., McDonald, S., … & Moher, D. (2021). The PRISMA 2020 statement: an updated guideline for reporting systematic reviews. Bmj, 372, 1-8. https://doi.org/10.1136/bmj.n71

Pozo, P., Sarriá, E., & Brioso, A. (2014). Family quality of life and psychological well‐being in parents of children with autism spectrum disorders: a double ABCX model. Journal of Intellectual Disability Research, 58(5), 442-458. https://doi.org/10.1111/jir.12042

Rabba, A. S., Dissanayake, C., & Barbaro, J. (2019). Parents’ experiences of an early autism diagnosis: Insights into their needs. Research in Autism Spectrum Disorders, 66, 101415. https://doi.org/10.1016/j.rasd.2019.101415

Roberts, J., Williams, K., Carter, M., Evans, D., Parmenter, T., Silove, N., Clark, T., & Warren, A. (2011). A randomised controlled trial of two early intervention programs for young children with autism: Centre-based with parent program and home-based. Research in Autism Spectrum Disorders, 5(4), 1553-1566. https://doi.org/10.1016/j.rasd.2011.03.001

Schieve, L. A., Blumberg, S. J., Rice, C., Visser, S. N., & Boyle, C. (2007). The relationship between autism and parenting stress. Pediatrics, 119(1), 114-121. https://doi.org/10.1542/peds.2006-2089Q

Solomon, A. H., & Chung, B. (2012). Understanding autism: How family therapists can support parents of children with autism spectrum disorders. Family process, 51(2), 250-264. https://doi.org/0.1111/j.1545-5300.2012.01399.x.

Wayment, H. A., & Brookshire, K. A. (2018). Mothers’ reactions to their child’s ASD diagnosis: Predictors that discriminate grief from distress. Journal of autism and developmental disorders, 48(4), 1147-1158. https://doi.org/10.1007/s10803-017-3266-2

Weitlauf, A. S., Broderick, N., Stainbrook, J. A., Taylor, J. L., Herrington, C. G., Nicholson, A. G., Santulli, M., Dykens, E. M., Juárez, A. P., & Warren, Z. E. (2020). Mindfulness-based stress reduction for parents implementing early intervention for autism: an RCT. Pediatrics, 145(1), 81-92. https://doi.org/10.1542/peds.2019-1895K

Wilson, K. G., & DuFrene, T. (2009). The Hexaflex Model and Mindfulness from an ACT Perspective. Mindfulness for two: An acceptance and commitment therapy approach to mindfulness in psychotherapy. New Harbinger Publications.

Zhang, W., Yan, T. T., Du, Y. S., & Liu, X. H. (2014). Brief report: Effects of solution-focused brief therapy group-work on promoting post-traumatic growth of mothers who have a child with ASD. Journal of autism and developmental disorders, 44(8), 2052-2056. https://doi.org/10.1007/s10803-014-2051-8

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Publicado

27/10/2021

Como Citar

ZYGOPOULOU , M. .; GKIOLNTA, E.; PAPAEFSTATHIOU, E.; SARRI, K. .; SYRIOPOULOU-DELLI, C. K. . Intervenções para apoiar pais de crianças pré-escolares com Transtornos do Espectro Autista: uma revisão sistemática. Research, Society and Development, [S. l.], v. 10, n. 14, p. e102101421932, 2021. DOI: 10.33448/rsd-v10i14.21932. Disponível em: https://rsdjournal.org/index.php/rsd/article/view/21932. Acesso em: 22 nov. 2024.

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Ciências Educacionais