Social and care support for people with dementia and their caregivers through a mobile health application
DOI:
https://doi.org/10.33448/rsd-v11i2.26073Keywords:
Caregivers; Aged; Communication; Mobile applications; Telemedicine.Abstract
The objective of the research was to analyze the use of the Mobile System for Elderly Monitoring (Sistema Móvel de Assistência ao Idoso, SMAI) in the care of people with dementia through the messages exchanged between family caregivers and health professionals. This is a qualitative study, based on a descriptive phenomenological framework, on the experience of using the SMAI application in the production of care in a geriatrics and gerontology service. Data were analyzed using the IRAMUTEQ software and Descending Hierarchical Classification technique to estimate the frequency of words by classifying text segments according to vocabularies and lexical analysis of words. Statistical analyzes were carried out on two textual corpus, one of which was the result of messages sent by caregivers and the other with the answers of health professionals. Thirty-four family caregivers of people with dementia and five health professionals participated in the study. The use of the system resulted in the organization of consultations; in the management of behavioral changes; in remote monitoring and care management by the service's health team, in addition to strengthening the bond and improving communication. The answers of professionals through the application pointed to a demand related to the organization of care for people with dementia at home. The SMAI application worked as an innovative tool for social and assistance support for family caregivers who received guidance on caring for a person with dementia and its specificities. Technological and social transformations can contribute to the development of increasingly innovative health care models. The study opens perspectives for the development of mobile applications that promote comprehensive care for people with dementia and offer a social support network to family caregivers.
References
ADI. (2015). Alzheimer’s Disease International. <https://www.alzint.org/resource/world-alzheimer-report-2015/>
Alves, T. O., Nunes, W. A. S. & Santos, M. V. F. (2021). Impacto da pandemia do Covid-19 na saúde dos idosos e intervenção da equipe de enfermagem. Research, Society and Development, 10 (14), 1-9.
Amorim, D. N. P. et. al. (2018). Aplicativos móveis para a saúde e o cuidado de idosos. Rev Eletron Comun Inf Inov Saúde, 12 (1), 58-71.
Bernardo, M. H. J. (2016). Envelhecimento com dependência: a invisibilidade dos cuidados familiares. Cuidado e Interprofissionalidade: uma experiência de atenção integral à saúde da pessoa idosa, CRV.
Brasil. (2020). Lei nº 13.989, de 15 de abril de 2020. Dispõe sobre o uso da telemedicina durante a crise causada pelo Coronavírus (SARS-cov-2).
<https://www.in.gov.br/en/web/dou/-/lei-n-13.989-de-15-de-abril-de-2020-252726328>
Caldas, C. P. (2003). Envelhecimento com dependência: responsabilidades e demandas da família. Cad. Saúde Pública, 19 (3), 773-781.
Camargo, B. V. & Justo, A. M. (2013). IRAMUTEQ: Um Software Gratuito para Análise de Dados Textuais. Temas em Psi, 1 (2), 513-518.
Cuffaro, L. et. al. (2020). Dementia care and COVID-19 pandemic: a necessary digital revolution. Neurol Sci, 41 (8), 1977-1979.
Carnut, L. (2017). Cuidado, integralidade e atenção primária: articulação essencial para refletir sobre o setor saúde no Brasil. Saúde debate, 41 (115), 1177-1186.
Estrela, F. M. et. al. (2020). COVID-19 e doenças crônicas: impactos e desdobramentos frente à pandemia. Rev baiana enferm, 34 (1), 1-7.
Figueiredo, K. et. al. (2018). Efeito de intervenção de exercícios físicos multifuncionais na percepção da qualidade de vida de cuidadores de pacientes com Doença de Alzheimer. Rev Bras Qual Vida, 19 (3), 29-49.
Hale, L. et. al. (2020). Constructing Normalcy in Dementia Care: Carers’ Perceptions of Their Roles and the Supports They Need. The Gerontologist, 60 (5), 905-915.
IBGE. (2018). Instituto Brasileiro de Geografia e Estatística. Projeções da população: Brasil e unidades da federação: revisão 2018. <https://biblioteca.ibge.gov.br/index.php/biblioteca-catalogo?view=detalhes&id=2101597>
Li, Y. et. al. (2020). Health literacy, social support, and care ability for caregivers of dementia patients: structural equation modeling. Geriatr Nurs, 41 (5), 600-607.
Menezes, E. L. C. et. al. (2020). Modos de produção do cuidado e a universalidade do acesso – análise de orientações federais para o trabalho das equipes da APS no
brasil. Ciênc saúde coletiva, 25 (5), 1751-1763.
Mueller, A. L. McNamara, M. S. & Sinclair, D. A. (2020). Why does COVID-19 disproportionately affect older people? Aging, 12 (10), 9959-9981.
Nascimento, H. G. & Figueiredo, A. E. B. (2019). Demência, familiares cuidadores e serviços de saúde: o cuidado de si e do outro. Ciênc saúde colet, 24 (4), 1381-1392.
Neri, A. L. & Vieira, L. A. M. (2013). Envolvimento social e suporte social percebido na velhice. Rev Bras Geriatr Gerontol, 16 (3), 419-432.
Ohannessian, R. Duong, T. A. & Odone, A. (2020). Global telemedicine implementation and integration within health systems to fight the COVID-19 pandemic: a call to action. JMIR Public Health Surveill, 6 (2), 1-4.
Polit, D. F. & Beck, C. T. (2011). Fundamentos de Pesquisa em Enfermagem: avaliação de evidências para a prática de enfermagem. Porto Alegre: Artmed.
Porter, E. J. (2007). Problems with preparing food reported by frail older women living alone at home. Adv Nurs Sci, 30 (2), 159-74
Ramos, A. K. et. al. (2015). Gerenciamento do cuidado de enfermagem ao idoso com Alzheimer. Rev Cubana Enfermer, 31 (4), 1-12.
Rathnayake, S. et. al. (2019). Family carers’ perspectives of managing activities of daily living and use of mHealth applications in dementia care: A qualitative study. J Clin Nurs, 28 (23-24), 4460-4470.
Rathnayake, S. et. al. (2019). mHealth applications as an educational and supportive resource for family carers of people with dementia: An integrative review. Dementia, 18 (1), 3091-3112.
Samus, Q. M. et. al. (2018). Home is where the future is: The BrightFocus Foundation consensus panel on dementia care. Alzheimers Dement, 14(1), 104-114.
Santana, R. F. et. al. (2018). Telecuidado para idosos com Alzheimer e seus cuidadores: revisão sistemática. cienc cuid saúde, 17 (4), 1-6.
Santana, R. F. et. al. (2020). Telecuidado no acompanhamento pós-alta de idosos com demência e seus cuidadores: quase-experimental. Online braz j nurs, 19 (2), 1-22.
Sena, E. L. S. et. al. (2009). Caracterização e contribuições do suporte social aos cuidadores de pessoas com doença de Alzheimer. Memorialidades, 12 (1), 129-150.
Silva, R. H. et. al. (2020). Aplicativos de saúde para dispositivos móveis: uma revisão integrativa. Braz J H Rev, 3 (5), 11754-11765.
Sim, I. (2019). Mobile devices and health. N Engl J Med, 381 (10), 956-968.
Yousaf, K. et. al. (2019). Mobile-Health Applications for the Efficient Delivery of Health Care Facility to People with Dementia (PwD) and Support to Their Carers: A Survey. BioMed R Int, (1), 1-26.
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Copyright (c) 2022 André da Silva Brites; Célia Pereira Caldas; Luciana Branco da Motta; Alexandre Sztajnberg; Matheus Costa Stutzel; Michel Pedro Filippo; Danielli Santos do Carmo
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